Tuesday 1 October 2013

Dysautonomia Awareness Month: Australian and New Zealand edition.

For those living with Dysautonomia, we are very aware of all it entails. However, for the majority of the community, including the medical community, Dysautonomia remains an unknown. It's time to change that.

Dysautonomia Awareness Month. 

Time to bring Dysautonomia into the community consciousness. 

For those who aren't aware I hail from the land of kangaroos, koalas, Vegemite, and Wolverine aka Hugh Jackman, known as Australia. Whilst we share much in common with our Northern Hemisphere cousins the Australian experience is often different and our challenges and experiences quite unique. We are small in number and services are even more scarce. And as a result our voice isn't always heard. We have a growing and close knit community which includes our brothers and sisters from across the Tasman Sea, in New Zealand. So this month I am focusing on the Australian and New Zealand experience.

Over the next few weeks a series of guest posters will be telling their stories and sharing their experiences living with Dysautonomia here in The Land Down Under and The Land of the Long White Cloud. Raising some long overdue awareness along the way.

Please take the time to read and support all the contributors. It takes courage to share our stories, so send them some love.

Michelle :)

For those unfamiliar, a short explanation of Dysautonomia can be found here.

One of the most famous people with a form of Dysautonomia is former Yellow Wiggle, Greg Page, who lent his name to a research fund at The Baker IDI, here in Melbourne, Australia. Donations can be made at The Greg Page fund For Orthostatic Intolerance.

Information about one of the current research projects under way in Australia at The Baker IDI, can be found here.

Crowded House is a great merging of Australian and New Zealand talent. I could listen to Neil Finn sing all day.

Crowded House - When You Come by CrowdedHouse-Official


All who are lovely enough to comment should be showered with cup cakes, glitter and macarons. I promise to use my spoon bending mind powers to try and get that happening for all who are lovely enough to share their words. Those who go the extra step to share posts should really get a free unicorn. Or at least the gift of finding the shortest and quickest line at the supermarket on a regular basis. xx

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