Julia: Exploring Dysautonomia Through the Arts for Dysautonomia Awareness Month 2014

(Wonder Woman)

The final piece for Exploring Dysautonomia Through the Arts comes from Julia. I loved this song from the first time I heard it and thought it was an appropriate way to end the month. Living with any chronic illness is filled with challenges and Dysautonomia is no different. But as hard as it is at times we all keep putting the next foot down on the path. We fight big and small battles each day, but we are all still standing. This month has really shown the creative spirit that exists in the community and I've found both inspiration and kindred spirits. Huge thank you to everyone who has submitted, read, commented or shared.



Julia contributed to last years Dysautonomia Awareness Month that focused on Australian and New Zealand stories. You can find her story here.

This is a song that I wrote (with the help of a friend whi is a music therapist). I was having a really rough time last year and couldn't sleep because of everything that was going on so I thought I'd put my words to music. It it the first song I have ever written.

I'm Up For the Fight 

I'm always behind

Always having to catch up,    

Catch Up

If I could just get through

With no hiccups,   

Catch up....  Catch up

If it’s not one thing

It’s another

But I'm always up for the fight

If it’s not one thing

It’s another

But I'm always up for the fight

If it’s not one thing

It’s another

But I'm always up for the fight

I'm done with one thing here comes another

But I'm always up for the fight

Every time I try to just, just be

Just be

It’s like my body is punishing me,    

Punishing me

Stop, punishing me

[CHORUS]

At night when my brain is spinning

Reality can hit hard

My days are filled with denial

Reality can be hard, 

Can be Hard

Reality can be hard

[CHORUS]

I'm up for the fight ----------- (x4)

[CHORUS] 

For more information on Dysautonomia be sure to check out:

DINET 

Dysautonomia International 

Dysautonomia SOS 

NDRF

Syncope Trust And Reflex Anoxic Seizures 

UK POTSies

Vanderbilt Autonomic Dysfunction Centre 

Remember to head on over here to donate to my Clicking My Heels For Dysautonomia, raising money for the Greg Page Fund for Orthostatic Intolerance and Dysautonomia research, at The Baker IDI. Thanks to the generosity of many we've already raised over $3,500, keep donating and hopefully we can reach $10,000.