What the hell is Dysautonomia? Sound like a great name for a band right?
Here is Dysautonomia with their latest hit "Gravity is not my Friend".
Dysautonomia otherwise known as that bastard vague syndrome which is hard to understand, even harder to explain and craps on your life or, as I now like to refer to it, Bob. Bob is like a crappy boyfriend. He turns up only when it’s convenient for him, forgets your birthday, buys “you” an x-box when you really want a bottle of Chanel no. 5, and takes you to Wolf Creek for your anniversary when you wanted to see Atonement. He’s the guy you’re embarrassed to introduce to your family and friends. The one you just want to forget but who you keep running into when you’re out on the town.
Bob occurs when your autonomic system, like Elvis, leaves the building. The autonomic system is the "autopilot" of the body that controls the automatic processes in your body, the things your body does without conscious thought eg your blood pressure, heart rate and breathing. When it misbehaves it can cause a range of fun symptoms:
Tachycardia (fast heart rate)
Bradycardia (slow heart rate)
Orthostatic Hypotension (low blood pressure when upright)
Orthostatic Intolerance (inability to remain upright)
Syncope or Near Syncope (fainting)
Shortness of Breath
Frequent trips to the loo
These can be mild or severe, a day after day after day crapfest (guess which category I fall into?)
You can have one or two symptoms, loads of symptoms and the symptoms can change day to day. Bob is one unpredictable disorder. Bob is a delight.
There is no cure for Bob. There are medications, lifestyle and diet changes. But everyday is about managing your symptoms as best you can, rejoicing in the days you can do a couple of things you really want to do and accepting the days where just getting out of bed is huge accomplishment.
This is the joy of living with Bob. It can make you feel like a freak at times.
Well I say EMBRACE YOUR FREAK!!!