tag:blogger.com,1999:blog-6181780691238814823.post9148643107893989948..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): What the Hell is Dysautonomia??Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-6181780691238814823.post-16242876683110455212013-07-22T15:29:31.610+10:002013-07-22T15:29:31.610+10:00Hi - I have dysautonomia too, although a milder fo...Hi - I have dysautonomia too, although a milder form. It is ever frustrating, and hard to make others understand. I have used your blog to try to help my family understand. Thank you for sharing your story. My thoughts and well wishes are with you. Many thanks MBC Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-56742415885833309972013-06-03T17:13:53.872+10:002013-06-03T17:13:53.872+10:00I've been living with this for years now &...I've been living with this for years now & I know the hell it puts you through. Be blessed. Fight it with all your mite. It's a lonely disease.<br />Sir Jameshttps://www.blogger.com/profile/12565917865218184591noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-72489848704258310092013-02-05T22:50:29.031+11:002013-02-05T22:50:29.031+11:00Thanks Rasp Berry. I know a few people who do Gers...Thanks Rasp Berry. I know a few people who do Gerson, but unfortunately I have a range of dietary intolerances and allergies and am already on a restricted diet, so it's not for me.Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-73594768012874790372013-02-05T03:09:00.156+11:002013-02-05T03:09:00.156+11:00you need to look into gerson therapy there have be...you need to look into gerson therapy there have been others with dysautonomia that have had a lot of successAnonymoushttps://www.blogger.com/profile/05486055258741954320noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-74608680995369600672012-08-25T19:30:23.973+10:002012-08-25T19:30:23.973+10:00You forgot to mention the best part...anxiety! lol...You forgot to mention the best part...anxiety! lol...random, frequent anxiety for absolutely no reason at all.xloriricexhttps://www.blogger.com/profile/12991917443840009594noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-7602604027388734372011-11-13T18:06:13.499+11:002011-11-13T18:06:13.499+11:00Tash - welcome and thanks. Yep, a bit of sarcasm g...Tash - welcome and thanks. Yep, a bit of sarcasm goes a long way in managing chronic illness. Saw on your profile your a psych and work in rehab. Rather exciting as I used to the neuropsych in a rehab ward here in Melb! Well pre-sick and having to give up work that is :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-81535960793138160352011-11-13T15:47:12.402+11:002011-11-13T15:47:12.402+11:00Ha ha, love it! Just found you linked on another ...Ha ha, love it! Just found you linked on another blog, and had to find out your pet name for your diagnosis. <br /><br />Loves Bob's description here! It's sassy and perfect! Good for you, and your good humour - the only sane way to manage chronic illness.Tashhttps://www.blogger.com/profile/12852274995696256872noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-76940424680783814762009-09-23T23:26:45.755+10:002009-09-23T23:26:45.755+10:00HONEY, I EMBRACED MY INNER FREAK YEARS AGO AND WHE...HONEY, I EMBRACED MY INNER FREAK YEARS AGO AND WHEN I THOUGHT I COULDN'T EXCEED MY FREAKINESS, THERE WAS A BASEMENT LEVEL; ALONG CAME DYSAUTONOMIA=) <br />I BELONG IN A CIRCUS OR SOMETHING!LOL! HAVE YOU EVER CONSIDERED THE POSSIBILITY THAT ALL PEOPLE WITH POTS/DYSAUTONOMIA ARE STARTING THE EVOLUTION PROCESS OVER AGAIN?? THINK ABOUT IT; NO ONE STARTS WALKING ON TWO LEGS, AND I DON'T BELIEVE AS THOUGH WE WERE MEANT TO BE ON TWO LEGS B/C THE SPINE IS SUCH A HORRIBLY MADE SYSTEM IN THE BODY....OLDER PEOPLE GET THE THORACIC KYPHOSIS(WELL, I OF COURSE ALREADY HAVE THAT...BUT I'M REALLY A 70 Y/O IN A 28 Y/O BODY FOOLING A LOT OF PEOPLE!!)ANYWAY, IT'S SOMETHING TO THINK ABOUT. YEARS FROM NOW, THEY'LL BE PICS OF PPL WITH DYSAUTONOMIA/POTS AND THAT WOULD HAVE BEEN THE BEGINNING OF THE PROCESS..........CLEARLY THIS IS YET ANOTHER 3AM THOUGHT=)<br />LONG DISTANCE HUG TO YOU!!POTSYGIRLhttps://www.blogger.com/profile/15813719976793872931noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-64822479160429858342009-08-12T23:23:59.745+10:002009-08-12T23:23:59.745+10:00This is just amazing. I can't imagine how frus...This is just amazing. I can't imagine how frustrating and scary living with this must be for for, but I gotta say that you are one hilarious chick. Good for you for sticking it to your man Bob!Ruralmamahttps://www.blogger.com/profile/01801771238637045987noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-79011857108696329482009-07-19T19:06:53.519+10:002009-07-19T19:06:53.519+10:00I am honoured to rate a mention in your blog! But ...I am honoured to rate a mention in your blog! But babe you don't need to borrow my courage - you have the most amazing outlook and handle your challenges with such 'poise.' It is a priviledge to be your friend; to laugh and cry and simply just go crazy sometimes! Love you heaps, Kerri xo<br />P.S. Well done in 'getting it out there' I am sure your story will touch many many people.Anonymoushttps://www.blogger.com/profile/11190762687093079066noreply@blogger.com