Showing posts with label Self-esteem. Show all posts
Showing posts with label Self-esteem. Show all posts

Thursday, 12 March 2015

One ticket, please.

(Why yes, I have done that on more than one occasion, source)

Once upon a time I stood in an auditorium and helped to present a new protocol for my hospital network. I fielded questions in the room and later outside in the foyer over bad hospital coffee and dry biscuits. Questions relating to the implementation process were interspersed seamlessly with meaningless small talk. In the months prior, I had sat in a room full of senior staff and held my own. Always saying my piece without fear. Well, until after. In the moment I was good. A switch would go off in my brain and I would be in full work mode. Afterwards I'd beat myself up  for stupid remarks and things I should have said. But somehow in that moment I had the gift. What my father would call, an ability to "baffle them with bullshit," though in truth some of my bullshit also had substance. Prior there was stress too. Panic that what I was doing wasn't good enough. What was I doing? I wasn't senior enough to be doing this. Imposter Syndrome is the term bandied around now and I had it in spades. In reality I knew my stuff. But that little voice in my head was a total Mean Girl. Work mode vs personal mode, night and day.

That anxiety and lack of confidence continues to plague me. Though those old instances were like a half-arsed trial run. Someone playing at anxiety. Or maybe I was trotting the boards playing at confidence. (I now have "Act, Gary. Act." stuck in my head.) Either way since becoming ill my anxiety has hit some quite spectacular levels. Losing the limited confidence and skills that I once had has been hard. I hate social situations. I hate interacting with people. More than hate, it scares me sick.

Last year I made a decision to put myself out there and both seek out and take any opportunities offered. Having said that, the Mean Girl has never let up. Telling me I had no chance. No one would want me. I was a complete idiot to even think I could. And my hair looked stupid. As exciting as a yes email was, it was also a shock, followed by pee my pants fear. My long suffering family can give you many tales of me prostrate on the ground fighting off rising panic as certain events came closer. I'd wind myself up with anxiety. I say "I'd" as if it was a past issue. But it's not. Not even close.

I'd rather dig my eyes out with a rusty spoon than make small talk with people. I call my family members "buffers." They are my safety zone in a social situation and without them I can feel the panic rise. It seems ridiculous writing it out. I'm a 41 year old woman who'd rather spend the rest of her life in a cave than have to speak to people, or worse yet, meet new people. Swim with sharks? Sure, why not. A dinner with others? Watch me flee as fast as my stumbling lurching legs can take me.

I run through all the stupid things I'll say or do, long before I get somewhere. And in the moment, the panic that suffuses my body means that the words that come out are often harried and odd. Add in that I often have trouble speaking at the best of times, between the dysnomia and dyspraxia I am very self conscious when I'm out and about. I'd rather sit quietly in a corner pretending to sip a drink than interact. Thank goodness for a temperamental body that means I am often physically unable to go places. Go, Dysautonomia Go.

Being ill I have also lost the social currency that is a job. What's the first question you get asked when you meet people? "What do you do?" Ugh. Already I am screwed. I tried to say I write the other day and my lack of confidence just made me look like a fool. And "I'm home thanks to illness," doesn't have quite the same ring to it. Writing from the safety from my bedroom in my pjs I can be confidence central. Out in the real world I melt like ice cream on a Summer footpath. A very panicky and insecure ice cream.

And yet a part of me keeps fighting.

Yesterday I took the plunge and bought the second last ticket for a local International Women's Day event. A. SINGLE. TICKET. I'll pause to let that sink in. Excuse me while I hyperventilate for a bit.
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.
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That's right. I completely lost my mind and booked the ticket before I could think. I blame the pain meds I took for the knives slicing into my abdomen. There's an anti-drug message for you.  Now it is dawning on me that tonight I will be alone.

In the next town.

At night.

In a room full of strangers.

In my chair.

ALONE.

I can already feel the bile rising in the back of my throat as the enormity of what I have done becomes clear.

So tonight I'll be watching a film about yodelling lesbian twins from New Zealand, and listening to Clementine Ford speak. All while swallowing down fear vomit and clenching my cheeks to stop anxiety bowels from making a break for it.

Wish me luck.

Next week I am going to a blogging event that requires networking. OMFG. NETWORKING. If you're in Melbourne for that, I'll be the woman in the wheelchair hyperventilating or feigning death in the corner.

Tell me. Have you taken any leaps into gaping maws of death of late?

Michelle

As I descend into a spiral of panic as tonight draws closer, I am turning to Madonna.

You're a superstar, yes, that's what you are, you know it.

Repeat ad infinitum

Here's hoping I don't unconsciously start doing the hand movements as I mumble this mantra tonight.

Sunday, 7 September 2014

In my mind.

(Why yes. I did get made up as a zombie and do a photoshoot.)

Who am I now? That's something I've been mulling over. I want to be many things. Many of them are reliant on being a fully able, fully healthy person, with unlimited funds. Those are the wants I bring out when I want to beat myself up. The unattainable. The ridiculous. The ones that I only want because I can't have them.

Self-flagellation and I are firm friends. Even when we haven't seen each other for months or years, when we get together it's just like old times. As if nary a day had passed. We take up where we left off and joke about all the ways I've failed or cocked up in life.

In my more sanguine moments I realise that I am being a dick, which goes right against my "don't be a dick" policy on how to live life. Somehow being a dick to myself is okay, because it's me.

Don't be a dick, Michelle.
Say it 10 times and repeat at need. 

Times like that I need to play this song (on loop and loud),



and list off all the ways I am pretty damn fabulous. Because I am. I just need to see it and embrace it.

Since being sick I've thrown off a lot of the usual constraints society places on us. Life's too short and energy too scarce, to waste it on filling a role designed by others. Coming from a pretty conservative family it's taken a lot of years, and soul-searching, to shake off the behavioural shackles I was wrapped in at birth. It's been a little step here and a little step there, to find the pieces of me. To feel okay in my own skin, not the skin everyone else says I should wear. To realise my opinions are mine, and they are okay. That I don't have to spout the ones I was taught as I grew up. That I can speak my mind. That I don't have to apologise for being me.

At 41, am I still rebelling, or is it simply that I don't give a crap anymore? A little bit of both probably. I definitely don't have all my shit together, as evidenced by many of my latest posts. But I'm telling myself that is okay, and slowly I am believing it.

I realise as I type this my circle of friends and family, although small in number, represent those who take me as I am. Those who read the blog are the same. They are people who like me for me, in all my mixed up, slightly left of centre, contradictory glory, not despite it. They don't tolerate my difference, they are here because they like it. And that is a gift. One for which I am very grateful.

So thank you Amanda Palmer for making this song (and Map of Tasmania, because that never fails to crack me up. Whoever thought that little Australian phrase would make it's way into any song? NSFW for those who haven't seen the clip before.)

I need to start believing, that when I wipe away the crap I cover myself with and polish up the picture of me,

I am exactly the person I want to be.

Michelle

I've included all the lyrics below rather than just selecting a few, because all of them sing to me and I think they'll sing to many others.

In My Mind
Amanda Palmer 

In my mind
In a future five years from now
I'm one hundred and twenty pounds
And I never get hung over
Because I will be the picture of discipline
Never minding what state I'm in
And I will be someone I admire
And it's funny how I imagined
That I would be that person now
But it does not seem to have happened
Maybe I've just forgotten how to see
That I am not exactly the person that I thought I'd be

And in my mind
In the faraway here and now
I've become in control somehow
And I never lose my wallet
Because I will be the picture of discipline
Never fucking up anything
And I'll be a good defensive driver
And it's funny how I imagined
That I would be that person now
But it does not seem to have happened
Maybe I've just forgotten how to see
That I'll never be the person that I thought I'd be

And in my mind
When I'm old I am beautiful
Planting tulips and vegetables
Which I will mindfully watch over
Not like me now
I'm so busy with everything
That I don't look at anything
But I'm sure I'll look when I am older
And it's funny how I imagined
That I could be that person now
But that's not what I want
But that's what I wanted
And I'd be giving up somehow
How strange to see
That I don't wanna be the person that I want to be

And in my mind
I imagine so many things
Things that aren't really happening
And when they put me in the ground
I'll start pounding the lid
Saying I haven't finished yet
I still have a tattoo to get
That says I'm living in the moment
And it's funny how I imagined
That I could win this, win this fight
But maybe it isn't all that funny
That I've been fighting all my life
But maybe I have to think it's funny
If I wanna live before I die
And maybe it's funniest of all
To think I'll die before I actually see
That I am exactly the person that I want to be

Fuck yes
I am exactly the person that I want to be



Remember to head on over here to donate to my Clicking My Heels For Dysautonomia, raising money for the Greg Page Fund for Orthostatic Intolerance and Dysautonomia research, at The Baker IDI. Thanks to the generosity of many we've already raised over $2,000, keep donating and hopefully we can reach $10,000.

Tuesday, 17 June 2014

Reclamation.

(Picasso, Woman at the Mirror, 1932, oil on canvas, Museum of Modern Art, NY) 


Mother.
Daughter.
Wife.
Sister.
Purveyor of sandwiches.
And bandager of knees.



She is the girl who wears green jumpers.
She is the girl with red shoes.
The girl who writes.
The girl who eats brown sugar straight from the jar.



The sick girl.
The quiet girl.
The good girl.


She is the construct of the perceptions of others.



She is all of these things.
She is none of these things.



She pulls the flesh from her body.
Slowly at first.
Then faster and faster.
Until all that remains is an amorphous pile of flesh and bones.




She surveys the pile.
She pokes and pushes.
Lifts and twirls.
Each fragment inspected in detail.
A lengthy process of selection and exclusion.



Understanding is reached.
A decision is made.
Excitement builds.



She begins building herself anew.
Piece by piece.
She selects what she wants.
What has meaning.
What feels true.
The pieces that are her.



Slowly the pieces coalesce.
They shudder and strain.
They intertwine and weave.
A portrait of herself of her choosing.



Others see the new her and shy away.
This is not the girl they saw.
The girl they knew.
The girl they were comfortable with.
This is something new.
Strange.
Wild.
Untamed.
The new her jars.
The new her challenges.
The new her blinds those who cannot see.



She walks tall.
She dances as she moves.
Her body fluid and right.
She has found her at last.
Her voice is present in every movement.
In every action.
In every word.
In the angle of her head.
And the song in each breath.



She stores the other pieces.
She reworks some.
She sees potential in others.
She stores them for later use.
For future changes and new possibilities.



She was always there.
Under the layers forced upon her by others.
But now she can finally feel and see and hear and know the lightness of her essence.



The lightness of being.
The lightness of reclamation.
The lightness of her.


Michelle

I found this bit of writing in an old notebook. I used to write whilst I sat in the car waiting for my boys to finish various after school activities. I have a collection of pieces of paper and notebooks with all my scrawled half-formed ideas. 

Remember to head on over here to donate to my Clicking My Heels For Dysautonomia, raising money for the Greg Page Fund for Orthostatic Intolerance and Dysautonomia research, at The Baker IDI. Thanks to the generosity of many we've already raised over $2,000, keep donating and hopefully we can reach $10,000.





Wednesday, 20 March 2013

Tabula Rasa


I am always amazed by is how a single negative comment can outweigh a dozen positive. Doesn't matter if it's about me personally, the blog, my shoes, how I do my hair, cook a a meal or even my taste in TV shows. If I'm not careful, every single good comment can be swept away with one little ,"you suck". Doesn't even matter who it comes from. Stranger, friend, family, that negative is like a tsunami sweeping away all before it. For some inexplicable reason many of us tend to hold onto those negatives. We imbue them with a power that is hard to dislodge. And ruminate upon them until we adopt them as our own. Self-flagellation at it's finest. All because that one comment tapped into an emotional raw spot in our psyche. 

I still recall every nasty nickname or put down, from primary and high school. I remember every time I was told I was not good enough. Not pretty enough. Not smart enough. Not something enough. Most of the time I can put it in it's place, but every now and then a crack opens up in my defences and someone will make a comment and all those old feelings will flare up as raw as they were back the day when they were first laid into my being. 

Being chronically ill my emotional resources are often stretched and on the days when I am really tired and really unwell those negative comments can end up gaining an importance they simply don't deserve. And being chronically ill you will be told all the ways you are doing it wrong, or how your response, or even you, are essentially a failure.

It's bad enough at a personal level, but for me one of the most heartbreaking aspects of living with a chronic illness is hearing how poorly others in the same position, are treated by those in their life. It's one of those times where I wish others didn't "get it". Where you would expect compassion there is, for many, naught but derision and criticism. Somehow our society has moved to a place where people are blamed for illness. Not just strangers, but family members and so-called friends. All competing to tell us how we are doing things wrong. As if illness, or an inability to recover, is somehow a personal failing.

So often I hear tales from fellow patients where they are told that the way they live their lives, deal with their illness, generally choose to live, are wrong. 

They are too engrossed in their illness. 

They are not trying hard enough. 

They want to be ill. 

Or the old chestnut, "it's all in your head".  

Despite logically knowing that we are doing our best under extremely challenging and often painful circumstances, we are often left feeling guilty or bereft because that little voice in the back of our minds, whispers "maybe they are right?" Somehow we give a monumental amount of importance to the perceptions of others. Others who are not living our lives and have only the briefest and most superficial glimpse of our day-to-day existence. We imbue others with an expert status on a topic they really know nothing about.

A long time ago, I realised that the question I needed to ask myself is, "how do the perceptions of others add to my life?" Do they bring positivity and joy, or do they make me feel worse? And if their ledger came up in the negative I put up boundaries or in some cases, cut people out of my life altogether. 

I cannot prevent others from being critical and negative about me and the way I choose to live my life or deal with my illness. But I can choose the importance I place upon their opinions. 

I can choose me. 

And I am worth it.

I choose to surround myself with those who bring me happiness and joy and who help me see that it's okay to simply be me, warts and all. Those who add to my life, not crush it at every opportunity or when I am most vulnerable. There are some I can't avoid, but I now choose how much weight I give their opinions and put a soul-preserving distance between us. 

None of us can control the actions of others, but we can choose whether we allow them the honour of writing on the slates of our lives. And it is an honour. Our sense of self is precious. Too often we are taught to undervalue ourselves and our needs. We carve the negative in stone, and hold it near and dear. We cherish it and repeat it to ourselves until it is all we can see. And in the end no one is ever satisfied. Not those who criticise. And especially not ourselves. 

In life we have choices, and one is to decide who we allow to define who we are. Have those we allow to direct how we feel about ourselves, really earned that power? Do they add to our lives or do they subtract from that which defines our perceptions of self worth? It's a hard lesson and one that takes work. Sometimes criticism is constructive and sometimes it is not. But by learning to value those who add to our lives and equally put the negative in their place, it can make what is already a difficult time a little easier.

Becoming ill you undertake a crash course in sorting out the wheat from the chaff. You are forced to re-evaluate what helps and what doesn't. You are forced to re-evaluate how you see yourself and how you want to see yourself. There will always be someone who puts you down or tells you that you aren't enough, but those people don't deserve the honour of defining how you see yourself. 

It can be challenging and heartbreaking, but you are worth the effort. Never forget that. 

Cheers
Michelle :) 

*Tabula Rasa (Latin) - Blank slate.