Showing posts with label Self-compassion. Show all posts
Showing posts with label Self-compassion. Show all posts

Friday, 20 February 2015

Compassion starts with the self. #1000Speak


This post is part of the #1000Speak. 1000 voices from around the world speaking up for compassion, 2oth February 2015. The world most definitely needs more compassion at the moment.
You can find all the posts here.

Self-compassion isn't an indulgence. It is a necessary part of life and without it we can't truly engage with the wider word in a compassionate manner. It's been a hard lesson to wrap my mind around and I am still working on it, but I'm getting there little by little each day. 


I am always amazed by is how a single negative comment can outweigh a dozen positive. Doesn't matter if it's about me personally, the blog, my shoes, how I do my hair, cook a a meal or even my taste in TV shows. If I'm not careful, every single good comment can be swept away with one little ,"you suck". Doesn't even matter who it comes from. Stranger, friend, family, that negative is like a tsunami sweeping away all before it. For some inexplicable reason many of us tend to hold onto those negatives. We imbue them with a power that is hard to dislodge. And ruminate upon them until we adopt them as our own. Self-flagellation at it's finest. All because that one comment tapped into an emotional raw spot in our psyche. 

I still recall every nasty nickname or put down, from primary and high school. I remember every time I was told I was not good enough. Not pretty enough. Not smart enough. Not something enough. Most of the time I can put it in it's place, but every now and then a crack opens up in my defences and someone will make a comment and all those old feelings will flare up as raw as they were back the day when they were first laid into my being. 

Being chronically ill my emotional resources are often stretched and on the days when I am really tired and really unwell those negative comments can end up gaining an importance they simply don't deserve. And being chronically ill you will be told all the ways you are doing it wrong, or how your response, or even you, are essentially a failure.

It's bad enough at a personal level, but for me one of the most heartbreaking aspects of living with a chronic illness is hearing how poorly others in the same position, are treated by those in their life. It's one of those times where I wish others didn't "get it". Where you would expect compassion there is, for many, naught but derision and criticism. Somehow our society has moved to a place where people are blamed for illness. Not just strangers, but family members and so-called friends. All competing to tell us how we are doing things wrong. As if illness, or an inability to recover, is somehow a personal failing.

So often I hear tales from fellow patients where they are told that the way they live their lives, deal with their illness, generally choose to live, are wrong. 

They are too engrossed in their illness. 

They are not trying hard enough. 

They want to be ill. 

Or the old chestnut, "it's all in your head".  

Despite logically knowing that we are doing our best under extremely challenging and often painful circumstances, we are often left feeling guilty or bereft because that little voice in the back of our minds, whispers "maybe they are right?" Somehow we give a monumental amount of importance to the perceptions of others. Others who are not living our lives and have only the briefest and most superficial glimpse of our day-to-day existence. We imbue others with an expert status on a topic they really know nothing about.

A long time ago, I realised that the question I needed to ask myself is, "how do the perceptions of others add to my life?" Do they bring positivity and joy, or do they make me feel worse? And if their ledger came up in the negative I put up boundaries or in some cases, cut people out of my life altogether. 

I cannot prevent others from being critical and negative about me and the way I choose to live my life or deal with my illness. But I can choose the importance I place upon their opinions. 

I can choose me. 

And I am worth it.

I choose to surround myself with those who bring me happiness and joy and who help me see that it's okay to simply be me, warts and all. Those who add to my life, not crush it at every opportunity or when I am most vulnerable. There are some I can't avoid, but I now choose how much weight I give their opinions and put a soul-preserving distance between us. 

None of us can control the actions of others, but we can choose whether we allow them the honour of writing on the slates of our lives. And it is an honour. Our sense of self is precious. Too often we are taught to undervalue ourselves and our needs. We carve the negative in stone, and hold it near and dear. We cherish it and repeat it to ourselves until it is all we can see. And in the end no one is ever satisfied. Not those who criticise. And especially not ourselves. 

In life we have choices, and one is to decide who we allow to define who we are. Have those we allow to direct how we feel about ourselves, really earned that power? Do they add to our lives or do they subtract from that which defines our perceptions of self worth? It's a hard lesson and one that takes work. Sometimes criticism is constructive and sometimes it is not. But by learning to value those who add to our lives and equally put the negative in their place, it can make what is already a difficult time a little easier.

Becoming ill you undertake a crash course in sorting out the wheat from the chaff. You are forced to re-evaluate what helps and what doesn't. You are forced to re-evaluate how you see yourself and how you want to see yourself. There will always be someone who puts you down or tells you that you aren't enough, but those people don't deserve the honour of defining how you see yourself. 

It can be challenging and heartbreaking, but you are worth the effort. Never forget that. 


Cheers
Michelle :) 

Saturday, 31 January 2015

What if today you chose kindness?

(Frida Kahlo, Self -Portrait with Thorn Necklace and Hummingbird, 1940)



What if you were kind to one person today?

What if that person was you?

What if you said 

I'm enough



What if you allowed yourself to believe 

That perfection is but a lie

And imperfection the masterpiece

That the things don't matter

That the what if's

And the if only's

Are the sleight of hand we use to hide the truth




Lies are told

By the empty sages who howl at the door




The musts

The shoulds




False prophets yell from street corners 

To tell you the wrongs

The failings

The disappointment

The bruises and the hurts

Delivered and delivering.




Empty words 

Bleat incessantly

Beat you down into submission

Ease in agreement

False beauty with talons

Acquiesce and be torn apart

Momentarily placated

Before

The goal posts move

And

Conflicting commands

Come from new corners.




Close your ears to sirens

Bind them

And fill them with daisies

Hold the silence

Listen for the first whisper of truth

Let it grow





The rhythm of the heart writes on the stone

Slow and steady

While the world around ebbs and flows

While beasts scream and claw

And clamber to cover and obscure




It continues below. 

Waiting to be recognised

Waiting to be found




Feel

Vibration and resonance

Know 

That it belongs





The song plays

While the mosquitos buzz

Hear the breeze 

Gentle caresses on leaves above

Eucalyptus to cleanse

Hints of rosemary 

For remembrance and clarity

Scent and sound.

Wipe the oils on your brow

And wrap the leaves round your heart. 






Focus on the melody

Let the words rise





Enough 

Worthy

Okay




Believe.




What if today you chose kindness?





Michelle





Sunday, 7 September 2014

In my mind.

(Why yes. I did get made up as a zombie and do a photoshoot.)

Who am I now? That's something I've been mulling over. I want to be many things. Many of them are reliant on being a fully able, fully healthy person, with unlimited funds. Those are the wants I bring out when I want to beat myself up. The unattainable. The ridiculous. The ones that I only want because I can't have them.

Self-flagellation and I are firm friends. Even when we haven't seen each other for months or years, when we get together it's just like old times. As if nary a day had passed. We take up where we left off and joke about all the ways I've failed or cocked up in life.

In my more sanguine moments I realise that I am being a dick, which goes right against my "don't be a dick" policy on how to live life. Somehow being a dick to myself is okay, because it's me.

Don't be a dick, Michelle.
Say it 10 times and repeat at need. 

Times like that I need to play this song (on loop and loud),



and list off all the ways I am pretty damn fabulous. Because I am. I just need to see it and embrace it.

Since being sick I've thrown off a lot of the usual constraints society places on us. Life's too short and energy too scarce, to waste it on filling a role designed by others. Coming from a pretty conservative family it's taken a lot of years, and soul-searching, to shake off the behavioural shackles I was wrapped in at birth. It's been a little step here and a little step there, to find the pieces of me. To feel okay in my own skin, not the skin everyone else says I should wear. To realise my opinions are mine, and they are okay. That I don't have to spout the ones I was taught as I grew up. That I can speak my mind. That I don't have to apologise for being me.

At 41, am I still rebelling, or is it simply that I don't give a crap anymore? A little bit of both probably. I definitely don't have all my shit together, as evidenced by many of my latest posts. But I'm telling myself that is okay, and slowly I am believing it.

I realise as I type this my circle of friends and family, although small in number, represent those who take me as I am. Those who read the blog are the same. They are people who like me for me, in all my mixed up, slightly left of centre, contradictory glory, not despite it. They don't tolerate my difference, they are here because they like it. And that is a gift. One for which I am very grateful.

So thank you Amanda Palmer for making this song (and Map of Tasmania, because that never fails to crack me up. Whoever thought that little Australian phrase would make it's way into any song? NSFW for those who haven't seen the clip before.)

I need to start believing, that when I wipe away the crap I cover myself with and polish up the picture of me,

I am exactly the person I want to be.

Michelle

I've included all the lyrics below rather than just selecting a few, because all of them sing to me and I think they'll sing to many others.

In My Mind
Amanda Palmer 

In my mind
In a future five years from now
I'm one hundred and twenty pounds
And I never get hung over
Because I will be the picture of discipline
Never minding what state I'm in
And I will be someone I admire
And it's funny how I imagined
That I would be that person now
But it does not seem to have happened
Maybe I've just forgotten how to see
That I am not exactly the person that I thought I'd be

And in my mind
In the faraway here and now
I've become in control somehow
And I never lose my wallet
Because I will be the picture of discipline
Never fucking up anything
And I'll be a good defensive driver
And it's funny how I imagined
That I would be that person now
But it does not seem to have happened
Maybe I've just forgotten how to see
That I'll never be the person that I thought I'd be

And in my mind
When I'm old I am beautiful
Planting tulips and vegetables
Which I will mindfully watch over
Not like me now
I'm so busy with everything
That I don't look at anything
But I'm sure I'll look when I am older
And it's funny how I imagined
That I could be that person now
But that's not what I want
But that's what I wanted
And I'd be giving up somehow
How strange to see
That I don't wanna be the person that I want to be

And in my mind
I imagine so many things
Things that aren't really happening
And when they put me in the ground
I'll start pounding the lid
Saying I haven't finished yet
I still have a tattoo to get
That says I'm living in the moment
And it's funny how I imagined
That I could win this, win this fight
But maybe it isn't all that funny
That I've been fighting all my life
But maybe I have to think it's funny
If I wanna live before I die
And maybe it's funniest of all
To think I'll die before I actually see
That I am exactly the person that I want to be

Fuck yes
I am exactly the person that I want to be



Remember to head on over here to donate to my Clicking My Heels For Dysautonomia, raising money for the Greg Page Fund for Orthostatic Intolerance and Dysautonomia research, at The Baker IDI. Thanks to the generosity of many we've already raised over $2,000, keep donating and hopefully we can reach $10,000.

Monday, 1 September 2014

When the target keeps moving.

(I made this earlier this year to try and remind myself to breathe. 
I think I might have to put it next to my bed.)

Pick a point and focus. That's what I tell myself. When everything is moving too fast and it seems like I'm about to be overwhelmed. Easier said than done some days. Easier said than done most days. I can feel it build. The days where the rubber bands are wound and wound and wound, until they sit stretched and pale on the brink of snapping.

Tiredness doesn't help. The all pervasive exhaustion that wraps around you and through you tying you down and pulling you apart.

No one thing stands out. It's all the things. All at once. When the respite is missing. When you keep thinking it's not supposed to be like this. I should be able to deal. By now. It's nothing new. It's the same old same old. The items are on shuffle, but the playlist is the same. But the down time is measured in moments, not days. Not weeks. And never in months. If there can be caring fatigue, surely I can have coping fatigue. You can take your strong and stick it.

I keep waiting for the planets to align. Those mythical moments where hope is fully realised and something happens. Something. I don't even know what that would constitute at the moment. Some sort of relief? Perhaps. An end to pain. I wouldn't knock that back. An end to nausea. An end to weakness and those days where even the sunlight on a light Winter day is too much for overstretched nerves. The advent of enough energy to do something. Something once more. Still no idea what that something is. But it is. The ability to do something, anything, I want. Just because.

But the planets continue to mock me from afar.

I keep thinking if there's one thing, just one, that rises above the rest, I can focus. I can concentrate my energies on that one point. I can set a plan. I list out my steps and write up dot points. I can address it and solve it and move onto the next. And then reset my focus to the next issue at hand.

And then the target moves. Or another rises up. Or one I thought sorted starts to spring up again. A hint at first. Then a nudge. Then a body slam. And I am back to square one. Or square negative ten, again.

Pick a point and focus. Pick a point. One point. Any point.

Take a breath. Start again.

Take a breath.

Take a breath. 

Shut out the world. Pull down the blinds. Batten down the hatches. 

Ride it out. Ride it out. Ride it out. 

Discard. Remove the layers of burden. Burden self-appointed. Burden appointed by others. Prioritise. Deal with the unavoidable. Ignore the rest. Shake off the unnecessary. 

Focus on the self. The primal self. The needs of now. The keystone without which the rest will fall. 

The definition of insanity is said to be doing the same thing over and over again and expecting different results. I know it, and yet I keep falling back to old patterns. I know it, but it is so much easier to retrace old paths. I push too far. I fall. I push too far. I fall. The familiar two-step. I know in my heart it'll end in tears, yet each time I convince myself that this time it'll be different.

Pacing. Self-compassion. Tied inextricably to a personality that wants to fight them on the beaches. Them being me. Them being my body. Them being systems comprised of nerves and neurotransmitters, cells and blood vessels. I dig in my heels to fight unconscious processes that simply do what they do. No plan. No intent. And I fall.

So I curl up and binge watch programs that I have seen a dozen times before. I curl up and look out the window. Watching the finches flit in and out of the bushes by the fence. I curl up and feel the soft fur of Freyja under my hands. The comfort of her warmth and familiar doggy smell. I curl up and watch the candle flicker on the top of my tallboy. I curl up and smell the soap sent by a friend. Part of a non-casserole care package. I curl up and breathe. I curl up.

And I'll stay curled up for a while. Tightly wound in my shell. In soft clothes and soft sheets. In soft light and soft sounds. Until it finally suffuses my being. Until I can feel it's gentle hum throughout. And I am restored. And healed. In the ways that matter. In the ways of the soul and the spirit.

So that's where I'll focus. That's where my small amounts of energy must be directed. Must. Must and Me not two words I normally associate with each other. It grates and feels wrong. But I will tie them together. Bound until they become familiar and comfortable. 

And I'll write it out again. I'll spew the words onto the keyboard. Empty it all out, so there's room for the things that will sustain.

Michelle

That not everything is gonna be the way
You think it ought to be
It seems like every time I try to make it right
It all comes down on me
Please say honestly you won't give up on me
And I shall believe
And I shall believe.
Sheryl Crow - I shall believe.

This is one of the songs in my angsty play list that tends to be on high rotation when a bump in the road sends me off into a ditch. Not everything is gonna be the way you think it ought to be. Time to learn that lesson again.