Showing posts with label Backpain. Show all posts
Showing posts with label Backpain. Show all posts

Thursday, 7 September 2017

Rambles

[Image: a woman with pink hair and wearing floral pjs is sitting on the floor of her bathroom with her head in her hands. Behind her are a grey towel and cream tiles. To her right is the top of a small concrete dog doorstopper she was given many many years ago for her 18th birthday.]

I haven't been writing much but I need to get back into practice so I thought I might as well just empty my head on the page for a bit. Might clear out the cobwebs and help me to get back in the swing. The haze of exhaustion and pain meds is great for rambles.



It always amazes me that I can manoeuvre my body into positions that don't break my sleep. That in the depths of exhaustion I can roll and twist. Flop back and forth until that sweet spot is found. A precision that is broken when my breath loses its rhythm and my lungs sharply overcompensate. Or a slight change in the outside temperature draws the internal warmth across my body thanks to poorly insulated brick and steel. The barest caress of air molecules on skin and I am awoken, gasping and trying not to vomit from the pain. The micro-millimetre of difference between agony and sleep is breached and I am I am frozen.

Move or be moved and agony results. I don't speak for fear of tensing already hyperaroused nerves. I don't speak to further delay the pain that I already know must come. Caught in limbo, knowing that movement will both relieve and crush. The spot in my back and hip that only ever hints at healing takes every opportunity to let me know it is still there. Plotting. Biding its time. I brace, at least mentally, and commit to what must be. Tears and bile rise as I am once more impaled by pain. I mutffle the cry in my pillow as Mr Grumpy sleeps on oblivious.

Four days in bed a necessary evil for a body pushed beyond its limits. The exhaustion, nausea, pain, weakness must be managed. There's no choice in the matter. Fighting through isn't an option at this point. The lead up I played bad patient doing all I should not. Stopping when I know I should is not always practical just as it is not always what I need to maintain a sense of self. But there are draw backs.

Cantankerous. My body is cantankerous. It punishes me for pushing it beyond it's limits. When I acquiesce and rest, it punishes me further. And so my sleep is broken by pain now only relived by standing upright. Standing upright that leads to passing out and all the precursor symptoms that make my daily life a challenge and lead to rest days in bed.

The pain in my lower back and hip are always there though immobility bought about by an overstretched Autonomic Nervous System increases the intensity. I am stuck again where my normal Dysautonomia symptoms are slowly settling but not enough to make being up and about in the house a real option. Just enough for the restless agitation to start up. The unscratchable itch that make me irritable and terse. Offer me a drink or ask me about my day and I may rip your head off. Don't ask and I will poke the irritation like a sore tooth and run through expletives in my head. And the pain spikes as I shift my weight, or pick up my glass of water, or stay still and lose myself in reruns on the screen.

Pain is suffocation. Pain is dropping to your knees as your vision darkens. Pain is waves of nausea, a shot of bile to the back of your throat to make you gag and spasm, shooting off yet more pain. More more more.

Heatpacks. Gentle moves. Pain medication. Meditation. Layers of aid. Layers of nothingness.

I try to read and find myself at the end of the page not remembering a word. I try to write and the words struggle through the concrete thick sludge in my head. I can feel the ramble.

Its icy outside. Spring has begun with icy winds, rain, hail and in some parts snow. Our fledgling vegetables are throwing up flowers. Small purple pea pods begin to emerge. The chickens are all laying. Their egg song fills the air echoing up the sterile dark corridor created by the twin brick walls of our and our neighbour's homes. The sun peaks under the blinds in random five minute blocks. Sharp and blinding. I scroll through photos of surrounding snow fields. Tree ferns bowing as the tiny flakes force them into genuflection. Caramel coloured cows stand in stark relief against their pure white background.

My bedside table is piled with the detritus of illness. Small mismatched cardboard boxes their silver and plastic contents half spill across dark wood. Ear plugs, tissues and empty water glasses. A half-filled dosette box balances precariously over the table edge. The accoutrements of this life scattered across the table and off, reflect the irritation and weakness that have swamped the last few days. In between, the pink and gold hand cream, the small round metal container of lip balm gold embossed on green. A pile of to read books, small ceramics and decorative boxes that remind me of kindness and friendship. Small pieces of calmer waters.

I can see the edge of my shower through the ensuite door and strike a bargain. If I can shower. Just shower. I'll be happy. If I can slough off the film and feel the water on my skin I'll be alright for the next few hours. I'll roll myself up in soft pajamas and pop the top on my handcream so I can smell its warm fragrance. Tomorrow I might work up to slathering it on my fingers. I'll rub the blood back through resistant blood vessels and the mottle that is livido reticularus will retreat for a few seconds. The purple bruise that radiates up from my nail beds will subside and I will breathe in marshmallow and peach.

But for now. I want to feel the heat beat on protesting skin and muscle. I need to stretch as the heat finally infuses my icy body. To loose myself in the sensation and sound. Slump on my plastic chair, head resting on the glass. Submitting to the

The day continues to flow.

My son brings me the freshly lain eggs so I can feel their warmth in my hands.
My skin now smells like oatmeal and honey.
Warmth and softness filters through my being thanks to floral flannelette.

And the sharp edges are worn a little smoother.

Michelle

Wednesday, 30 April 2014

Coming up for air.


Should you write when you are in pain, on pain meds and exhausted? Probably not. But when has that ever stopped me? I am not online a lot at the moment. Each time I think I am ready to get going again I am quickly disabused of that idea by the pain that leaves me gasping for air.  I'll get there again. I can see the emails piling up. Get on, reply to one, and down I go again. So bear with me. Pain is an evil beast. 

Down down down. Then coming back up for air. Before the slow descent back down. Tired. Pain. My back has gone out again. Again. Yet again. Once more with feeling. A feeling called pain. An emotion called frustration. A body melting in exhaustion.

One dramatic sneeze-cough combo courtesy of a bug and here I am flat on my back. Circling the drain and going slowly mad.

Stuck, confined, held down and immobile. Knowing that each day in bed equals ten trying to claw my way back to the normal that is decidedly abnormal. Pain medication to make life bearable. Pain medication to drop my blood pressure. Stand straight up equals some relief from pain. Stand straight up equals plummeting blood pressure. Rock and hard place. Pain and more pain.

Get up. Aggravate that disc. That one. Time and again. My Achilles heel in my lower back. One of many that made a break for it way back when I was still functioning. When I was still working and living. When life gave me a 3mth preview of what was to come. 

40 is the new 80. Or 32 back then. When I still believed in miracles and recovery. The stupidity of youth. The pleasant stupidity of a life before illness become my nine to five. And dreams went down as quickly as I slid down to the floor of my office.

Lying in bed. Resting. Letting the worst of the inflammation reduce. More pain meds. No more meds. Balance the meds. Keep the pain at bay. Convince yourself you can leave it a little longer. Just an extra 30 minutes. No, an hour. You can do it. Lets make it two. Convince yourself you don't need them at all. And then BANG, the chase begins. Pain. Pain that was at bay. Pain that if not tamed was at least placed in a cage. Pacing, agitated behind the bars. Back and forth. Tail twitching. Waiting for it's prey to get complacent. For that first weakness to appear.

It pounces. Rips and tears. And the chase begins anew. No time for recriminations. You must chase and chase and hope that you can get back to the moment when it was caught. Held and tied down with ropes and nets. Until you once more tell yourself that it's okay now. The beast is tamed. You can skip that next one. A hot pack, some meditation and a plucky can-do attitude are all it takes.

Then you begin to drown again. Lie immobile on the bed. Breathing through the pain spikes. To chastise yourself once more.

If only.
I should have.
They were right.

Tomorrow the work begins. Tomorrow the small movements. Like water on rock. Small and slow. Time the best healer. The carver of new paths and new backs.

But till then I will come up for air every now and then. To make sure I am still breathing. That the world is still turning. That there is something to return to. A small glimpse of light and hope. Come up for air to be reminded that it's okay to take the next dose. That rest and sleep are okay. Because pain untended is not heroic. Pain untended is talons and claws. Fire burning. Breath taken. Minds unhinged. And longer recovery.

I'm falling apart. And knitting together.

The broken whole revisited.

The broken whole recreated.

Till the next time.

Michelle

Wednesday, 7 November 2012

Setbacks: Day 7 #NHBPM

Well it's Day 7 of NHBPM. Despite a back that still refuses to play ball I am attempting to keep chugging along. But not with a blog, because that would take brain cells and coordination. Things that are in low supply today. Today I give you a vlog.

Be amazed at the crazy woman on the video with little brain power but a lot of stubbornness. 

Can't sit up? That's no impediment to vlogging. 

Pain shooting down your butt cheek? Harden up Princess. 

Can't breathe. Only a wuss would stop her vlog to breathe.

Concentration and coherence no longer in residence? Why that's the perfect time to vlog.

I give you Setbacks (all puns intended).


Michelle :)


Day I: Why do I write about my health.
Day II: Find a quote and use it as inspiration.
Day III: I don't know about this, but I'd like to.
Day 4: A chronic handbag
Day 5: Health Activist Soapbox 
Day 6: And I've done my back, because it's not like I had anything else going on.

Love K D Lang, and the title of  this just seems the perfect choice.

Tuesday, 6 November 2012

And I've done my back, because I had nothing else going on: Day 6 NHBPM

Day 6: News-style post: Warning this post is written whilst on the good pain meds. No coherency, grammar or spelling guaranteed. Stubbornness means I'm not going to let a little thing like being flat on my back and whimpering each time I move, get in the way of NHBPM. Huzzah!

STOP THE PRESS!!!!! 

MICHELLE HAS DONE HER BACK. 

YET. 

AGAIN. 
(le sigh)

Dear lord, that's not much of a news story but it's my crappy story. You see I collect chronic diseases/disorders like other people collect salt and pepper shakers. Because one is just never enough.

I've been doing my back since my early 30's. One moment I was fine. The next I was in the middle of my pilates class and heard a sound that no one should ever hear from their back. 24hrs and 4 popped discs later I was told that I had the back of an 80 year-old-woman, otherwise known as Degenerative Disc Disease. Just what every girl wants to hear. A haphazard mix of physio, pain meds, hydrotherapy and crying into my Cornflakes got me through those months, but unfortunately did little to reverse the underlying condition.

Since that time I have popped multiple discs, suffered through sciatic pain more times than I can count, and been felt up by way too many physios. I had to laugh that my last MRI showed a bulging thoracic disc, but that was inconsequential according to the Radiologist. The near constant pain radiating from that same spot would lead me to disagree with his finding of inconsequential!
Makes me want to attempt a Sheldon Cooperesque head explodion on that particular Radiologist.

Today I am lying in bed flat on my back praying that the meds will at least take the edge off the pain, although all my past experience tells me it wont. Yet again I just have to wait it out. Until the pain becomes bearable and I can start the usual round of back exercises. You see adequate pain meds for discs that simply refuse to stay put and enjoy jumping on and crushing the nerves leaving your spinal cord, are pretty much non-existent. Nerve pain is a bitch. Be it the knife in your back or the molten lava of your feet. Or the near constant tasering and cattle prodding of various parts of my body. I've yet to find an adequate method of relief.

I live in pain daily. I have for years. I don't talk about it much as it's just one more thing on the list. I can't really recall a time when I wasn't in pain. From Rheumatoid Arthritis when I was a kid (thankfully I grew out of that in my early 20s), to severe endometriosis (which ended with a hysterectomy when I was 25), my frequently popping hips and knees and ankles and jaw and..., migraines and headaches, my stenosed and spasming jugular, my back, the inexplicable chest pain of Dysautonomia, and the neuropathic pain that has taken up residence over the past 6 years, my life seems to have always been tightly wound with pain.

I'm not sure why I don't really talk about this one aspect of my life more. I am very open about most aspects. I think in a sense in and out of all the various medical problems I have had over the years, it has simply become white noise. It isn't confined to one condition. Like fatigue it peppers pretty much all my various conditions. It isn't an entity unto itself.

And I have so many different types. When you head to a doctor and say it's not this type of pain or that type of pain, but a new or different type of pain they look at you like you are crazy. But say that to another chronic pain sufferer and they know exactly what you mean. My pain is just as complicated as all other aspects of my presentation. It's exhausting just thinking about it.

I know it's something I need to get better control of as pain spikes just make my autonomic symptoms worse. But where do I start? What first? Do I want more doctors? Or more meds? And do I really want to spend more money to be told by yet another doctor there is nothing they can really offer me?

Being chronically ill is an exhausting business. Every day my body plucks a new challenge from its repertoire. And every day I have to find a new way to manage it. Consistency would be a nice a change really. At least then, or so I tell myself, I could learn how to manage it all better. But for now I need to be able to think on my feet (or back, as the case may be) and be flexible and ready for any contingency. Some sort of rapid response, SWAT unit for what ever my body throws at me.

Or simply, as Mr Grumpy says, just tell this body of mine to get its shit in a pile.

funny gifs

Or even better, maybe I can just twirl around like Linda Carter/Wonder Woman. And Shazam! All the ill health is gone. At least in that version I might end up with some cool boots.

Michelle :)


Day I: Why do I write about my health.
Day II: Find a quote and use it as inspiration.
Day III: I don't know about this, but I'd like to.
Day 4: A chronic handbag
Day 5: Health Activist Soapbox 


I was going to add Johnny Cash's cover of The Nine Inch Nails, Hurt as the title is so apt, plus it's a fantastic song. But it's dark nature doesn't really fit today. I need a kickarse, sing it loud song to motivate me so I give you Basement Jaxx, featuring Lisa Kekaula, Good Luck.

Monday, 28 March 2011

I will now impress you all

Well I've done it again. Broke out the camera and tried to be coherent for more than one nano second.  Why do I do these things?  Given that fact that Eunice is out on indefinite stress leave, you'd think that my nearest and dearest would intercede on my behalf and remove the camera from my delusional hands.  But no.  I'm starting to think they find the whole thing rather amusing.  Our own familial form of the American Idol auditions where tone deaf fools get up and sing Celine Dion abominations, completely unaware of how truly crap they are. 

Through my filmic endeavours I have discovered that I have a fondness for the word 'crap', that I forget to brush my hair, and that my misbehaving eyes are now accompanied by misbehaving mouth.  I think my next craft project will be to create a dapper tin foil hat to complete the ensemble.  Though I will have to borrow some cats from my neighbours as two dogs don't really give the right vibe.


As my creative endeavours did leave me a little the worse from wear (ie, in excruciating back pain and unable to move from the horizontal) my delightful children brought me a glass of wine and a pink bendy straw.  I am raising them right people.

(love my kids)

Cheers
Michelle :)

For those who don't know the joy of Faith No More, have you been living under a rock?  Here is Falling to Pieces 1990.  Brings back memories of Year 12 parties in dodgy backyards, a bucket mix of miscellaneous alcohol, and a whole lot of teenage angst.  Good times.