Showing posts with label LympheDivas. Show all posts
Showing posts with label LympheDivas. Show all posts

Sunday, 2 February 2014

LympheDIVAs Compression Gauntlet Review


Compression garments and Dysautonomia go hand-in-hand. From stockings, to stop the blood pooling in our legs, to stomach binders to try and stop the abdominal pooling that can leave you looking like are about to pop out a baby. Some even resort to a full body g-suit. Your choice of compression garment will depend on where you pool and how bad your pooling has become. But in all cases it's about minimising the symptoms that result from pooling and being able to stay upright for longer.

My legs have always been the biggest source of pooling hence my focus has been primarily on stockings (for a list on my tips for buying compression stockings, including a couple of the main distributors/brands see here). However, the last year or so I have been having more pooling in my hands. My right hand in particular. And it has been painful. I do my hand exercises, I massage the worst spots but overall it is getting worse.

All of this led me to consider the purchase of a compression gauntlet. After much indecision I decided to purchase a gauntlet from LympheDIVAs, who have an amazing selection of colours and patterns available. I have been impressed with their fashionable range for a number of years now, and have often lamented the fact that they do not also make make compression stockings. As such they ticked my two requirements, medical grade compression and, the often elusive, fashion element.

Like all compression wear these are not cheap. I managed to find a gauntlet in the style I wanted as an end of line/no return product on compressionstockings.com but even then it was still $62 AUD. Not a small investment.

I decided on a LympheDIVAs, Small, Right-handed, 20-30mmHg (Class I) gauntlet, in Deco.

The verdict:

I so wanted to say I loved this product, but, I'll have to say I was underwhelmed by both quality and fit. And somewhat disappointed, as I had been excitedly awaiting it's arrival. (Yes, new compression wear excites me. I may need to get out more.) I'd been looking forward to trialling it and hoped I could report back that it was well worth the money. But for this sample I'd have to say I wish I'd paid full price so I could return it.

Sizing:

Sizing is so important with compression wear. It can also be problematic if you are not a typical size. Even with regards to compression stockings, issues such as bunching and length are common. Additionally, with wear, compression can loosen, hence manufacturers recommend replacing every 6 months.

I thought myself a savvy buyer of compression wear, but alas I was caught out. I followed the directions on the LympheDIVAs site for measurements. I measured twice myself and then had a family member measure to triple check. My measurements fell in to the Small sizing on all three measurements. But my spindly wrists disagree. Even with a Small sizing the wrist portion of the gauntlet is extremely loose and bunches up. It also feels quite bulky compared to the rest of the material. It is only at about 2 inches below my wrist and well into my palm that I can feel the compression.

Compression elsewhere is comfortably firm. Given I have been wearing 20-30mmHg stockings for a number of years now, the pressure on my hand is not worrying. Similar to compression stockings the pressure effect fades after about 30min and I noticed little beyond some restriction of movement. Even after a full days wear it was still comfortable. 

Quality:

The print/colour is patchy. The primary top hand portion is much like the photos on the website, however the underside and thumb portion down to the wrist of the print are not consistent and has visible lines in the colour. The edging above my knuckles and at the wrist are smooth, however the same cannot be said of the thumb portion which was rough and unfinished. Similarly, the seams on the thumb, whilst expected, are very visible, particularly against the darker pattern of the fabric and rough. Given the price of the garment I would expect a higher quality of workmanship. 

I do have problems with seamed compression garments eg I can't wear a lot of the sporting compression brands as the seams leave me sore and bruised, but the seams on the gauntlet have been okay so far. There are brands that are seamless which may be of interest for those with sensitive skin (eg Jobst and Solidea).

(I thought initially that the lines going from thumb to wrist, were from folds but they are printed onto the fabric. With lighter patches in the block colour up in the junction of thumb and forefinger, wear the dye seems not to have taken.)
(Bunching at the wrist can be seen easily in this picture. And the rough thumb seam, especially at the ball of my thumb.)
(The wrist band is very loose and there is essentially no compression or even firmness for this and the bottom part of my palm.)

(The hemming of the thumb portion is quite rough and uneven. It had hard bundles of loose threads which I needed to remove before wear.)

But the big question is “Does it work?”:

The simple answer is, yes. Although it is hard to tell if I am getting the full benefit given the looseness of the lower hand and wrist portion. The painful swelling I have been experiencing, particularly in the top of my hand is lessened considerably. It is important to note that with good fit over my knuckles I had no issues with blood flow to my fingers, ie no swelling or discolouration, even after a full days wear.

I will continue to wear the gauntlet, given I purchased it knowing it was a no return item I need to get my moneys worth. And even a small improvement in the engorgement in my hand, and associated pain, is a good outcome.

I should add the product has wicking technology which draws away perspiration, which may be important for those who have hyperhydrosis. As I have anhidrosis I was unable to test this feature even though we are in the middle of a heatwave here in Australia.

My tips:

If you have the ability go to a store that sells the gauntlets, head in and view them in person. As someone who cannot easily get to the shops I rely on Internet shopping, but given this experience I would try and make my way to a distributor to see the product and try them on. I did attempt what I thought was my due diligence with 3 measurements, and reviewing the products on both the parent site and others, but in this case it was not enough.

If buying online, I would ensure that I could return the product if it didn't meet my expectations or was faulty. (If in Australia: I was also caught out in that the return policy was restricted to "from 30 days of purchase", given I didn't receive my gauntlet until after 30 days, my return policy was already null and void had this been an option). Admittedly, I may have become a little complacent given I have had no problems before, despite years of buying compression wear online.

If you are even slightly outside of normal it may pay to have a custom product created. I have long skinny arms with the wrists of a 10-year-old girl, it would seem this is not the norm, though I would have expected better fit given my measurements were within the Small sizing. If considering an armsleeve or more gauntlets in the future I would head down this route next time. 

*This site has a fantastic round up of tips and information about compression armsleeves and guantlets. Well worth a read before purchasing an upper limb garment.*

Compression wear of any type are an expensive investment. When money is tight, as it is when you are chronically ill, you have to be incredibly judicious in how it is spent. You want the most bang for your very limited buck. Sadly, despite my high hopes, this gauntlet did not match with it's price.

I did note from reading on the LympheDIVAs website that they are looking at reviewing sizing and even considering custom compression wear in the future. They also welcome feedback so I have penned an email and sent it off to the company. I am impressed that they are looking at introducing custom options, though I do wonder if the additional cost on an already expensive product, will make them prohibitive to many.

I do give LympheDIVAs a huge high five for introducing colour and pattern to the compression market which seems to have an unhealthy obsession with bland. It is the primary feature which drew me to their products initially.

I would be interested to hear from others who have purchased a gauntlet from LympheDIVAs or other brands. Did you encounter similar issues? Did you go down the customised route or buy mass produced? How many have moved onto upper limb compression?

Michelle :) 

Wednesday, 6 June 2012

Compression stockings: From beige to brilliant.

After multiple requests for information on where I purchased my colourful compression stockings I thought it was time to do a post.
(This is Jade, from the Juzo soft Winter range. 
More green in really life, but as you can see goes well with my girly floral dress from ASOS
You'd never know they are actually medical grade compression stockings.)

I should add this is not a sponsored post (mind you I wouldn't knock one of those back. It would be nice to be able to pay for my own coffee just once). Nor is it an exhaustive list of brands and options. Instead it is a starting point, based on my personal experience, for those considering compression stockings for the first time, and those tired of the regular range of stockings and looking for a bit of spice and colour in their compression wear. If anyone knows of any other brands offering a bit of fashion let me know and I'll update the post. Your treating doctor should be able to advise you as to whether compression stockings may be helpful for the management of your form of Dysautonomia and the strength and type of stockings you may require.

One of the most common recommendations to help manage Dysautonomia is to use compression garments, in particular compression stockings. As a woman in her 30s having to wear something that is more associated with the elderly is rather disheartening. It is even more disheartening when you start looking for a pair and find that the majority are rather unattractive shades of beige. Oh, you can get your hands on white or black and occasionally a navy, but that is about it for the majority of brands on the market.

Why do so many of these companies think that a) only the elderly or post surgical patients wear these products and b) that if you require them you must automatically lose all fashion sense? Even as a granny I'd want to rock some sexy legs. Illness and infirmity are bad enough without adding dowdy to the mix.

Luckily a few companies are now starting to realise that there is a huge untapped market of patients who want to feel attractive as well as prevent cankles and pooling. Whilst the market is improving there are still few companies who provide even a semblance of fashion sense for higher strength compression hosiery.

But before you get to purchasing your compression stockings there are a few things you need to consider.

1. What length do you need?

Compression garments come in a variety of lengths. At their most basic these are: waist high, thigh high and knee high socks. Waist high is most commonly recommended and what I started with. (Waist high ones do have the added bonus of working like Spanx and give you a perky bum and smooth out your saddle bags.) However, if like me you have chronic gastric issues and permanent abdominal pain, waist high stockings can be incredibly uncomfortable. I now choose thigh highs simply for the comfort factor and find that they still make a discernible improvement in my ability to function and remain upright.

You can also find toeless and footless compression stockings. Great if you want to wear thongs (flip flops for my US readers) in Summer. My only word of caution would be if like me, you have significant pooling issues and poor vascular flow, you can end up with very fat, very purple toes hanging out the bottom of your stockings. Not the most attractive look, or the healthiest option for your toes.

If you choose thigh highs or other non-full length options be aware that the band that holds up the stocking can be made from a range of products including silicon and latex. If you have allergies this may need to be taken into account.

Whilst this post is specifically about compression stockings it should be noted that there are also abdominal binders and a range of upper limb garments (love the fashionable range of full sleeves and gauntlets from LympheDivas and wish they did stockings as well, plus they now have an Australian distributor) which may be useful if your pooling extends to the upper body, and full body compression suits, similar to the G suits favoured by pilots.

2. What strength compression do you require?

Depending on your level of pooling you may require different levels of compression. Your treating doctor will be able to best advise you on the strength you require based upon your particular medical situation.

Compression levels are measured in mmHg which refers to millimetres of mercury. (One millimeter of mercury is approximately 1 torr, which is 1/760 of standard atmospheric pressure.)

For some, sports compression garments such as Skins may suffice. These are easily accessible both in store and online and may be a good starting point for those tossing up whether or not, compression garments may be for them. One thing to consider with these type of garments are the multiple seams in the structure of the garment. Whilst for many this may not be an issue, if your vascular flow is particularly poor or your skin is sensitive, these seams can leave bruises and sore spots, something I found out the hard way.

If you only need a small amount of compression (eg 15-20mmHg) there are more options available. For example, the UK company Happy Healthy Legs offer a range of lower strength fashionable compression stockings in the 15-20mmHg range. Other companies such as Rejuvahealth and Juzo also offer fashionable compression hosiery in this range.

Moderate strength (20-30mmHg) fashion options are available from both Rejuvahealth and Juzo. This is really the minimum strength recommended for Dysautonomia management.

Juzo were the only brand I came across that had higher strength (30-40mmHg) colourful compression stockings. Whilst there are even higher strength compression stockings available I haven't been able to find any that come in either bright colours or patterning.

If you want to compare a wide range of brands (more than I can cover in one post) and stocking types Compression Stockings.com is definitely a great starting point. I use them and it is also the company that I've heard the most positive feedback about from fellow patients.

3. Sizing.

Every brand has their own sizing. Check out their sites for instructions particular to each brand. If possible get someone else to measure for you. When I purchased my first pair of waist high Jobst stockings the pharmacist did the measurements. I had no idea how many they needed to take for accuracy. The tips I took from that early experience are: measure both legs separately (some people have one legs that is significantly different from the other) and measure twice or even more. I've also found that if your measurements cross over two sizings it pays to get the smaller size. With time and frequent use there will be some stretching.

Here in Australia if you are purchasing stockings for the first time and are unsure, most local chemists will be able to size and order them for you.

4. Cost.

Medical compression stockings are expensive. Pay with a kidney or first born son, type of expensive. So you want to work out exactly what you want and get your sizing right. Additionally, when buying certain products eg some of the Juzo soft coloured range, they are dyed for individual purchase and have a no refund or return policy.

Depending on your country of residence and insurance company, you can request a prescription from your doctor for your stockings and claim a set number of pairs under your insurance every year.

For those outside the US or UK you also need to factor in the postage when purchasing stockings online, and this can vary widely. For example, UK company Happy Healthy Legs charges a flat fee of £10 for international purchases, US company Compression Stockings.com which sells multiple brands and is a great starting point (also great customer service from my dealings with them), charge around $5 per item postage to Australia, whilst Rejuvahealth, also from the US charge a highly prohibitive rate of $39 for postage to Australia (I did contact the company about this, but they were adamant they were unable to make postage cheaper).

I would say that cost is indicative of quality when it comes to compression stockings. In the long term it can be more financially sound to buy one pair of the expensive stockings than to buy 10 pairs of cheaper versions that lose their compression quickly or have poor or haphazard compression.

5. Comfort.

Compression stockings, fashionable or otherwise aren't always comfortable. They are hot, which is one reason I put off wearing them for a long time. When your body temperature is already set at Sahara they can be stifling. Having said that, I do find even going to thigh high did help lessen that somewhat, and they are fine in the cooler months. Sometimes you have to weigh up the heat factor with how much of a difference they can make to your functioning.

They are hard to put on and it can be exhausting, especially when you have weakness and fatigue. There are devices you can buy to help with putting them on, most companies selling compression stockings offer these. There are also multiple how to's on the Internet and YouTube.

Once on I find I don't really notice them anymore. Especially when you are wearing them every day you get used to the feel.

6. Care.

Caring for your compression stockings is easy. You can hand wash them and then leave them in a warm shady spot to drip dry. Or if like me, you have minimal hand strength, simply put them in a lingerie bag and pop them in the washing machine on the delicates/gentle cycle.

To avoid snags when putting them on, remove or cover rings and check for sharp edges on nails.

7. Now to the most important part, fashion options.

Personally, I've been buying the Juzo Soft colour range from Compression Stockings.com. Their range do change based on the Northern Hemisphere seasons, and there is no guarantee that the same colours will be available the next season. If you are purchasing from Australia allow about 3 weeks for delivery of the coloured range eg violet and fuschia. Other traditional colours such as chocolate and shadow, are roughly a week from order to delivery. I now have cranberry and jade (from the Winter range) and chocolate, shadow and violet (from the Summer range) and am really happy with the vibrancy of the colours. They have been really well worn and washed repeatedly, and the colours have maintained their vibrancy and compression remains unchanged. They are a little long in the feet (I have tiny feet and long legs) but with some careful adjusting I can get them to sit and compress properly. This range is also one of the few that goes up to 30-40mmHg.

 (Love my new violet stockings from the Juzo soft Summer range.)
(Cranberry, from the Juzo soft Winter range. I wear these all the time.)

I love the Rejuvahealth range, and if I lived in the US would buy a few pairs. Who hasn't wished for some bright purple paisley compression stockings?  Or vintage lace? Their highest level of compression is 20-30mmHg. I don't have personal experience with these, so if any reader has, and can give some idea about quality and durability that would be great.

(photos from Rejuvahealth)

I have wondered about dying a pair of traditional beige or white compression stockings. I'd love a tie-dyed pair in funky rainbow colours. If anyone has tried this or has any suggestions on how to do this please let me know. (see Juzo soft tie-dyed in Update below).

Or, if it's possible to add some small appliqué to add detail, without messing with the compression?

So there you go. A small starting point to finding some fashionable compression stockings. Hopefully more companies will come to the table and offer more fashionable options, not only in stockings but other devices that the ill or disabled require. We may be unwell but we still want and deserve to look fabulous.

Cheers
Michelle :)

NB: I have also purchased compression stockings from Jobst in regular black and they too are a great quality brand. The have maintained their compression and look good as new even after 2yrs wear. 

Update: Juzo Soft now do a fabulous range of tie-dyed stockings with either colour background white pattern or black background coloured pattern. I purchased a scarlet with white pattern earlier this year and must say I love them. 



Update: Chic Compressions are now doing  Mediven swarovski crystal encrusted compression stockings (highest rating 23-32mmHg) with a choice of 13 and in 3 crystal patterns, Opera, Fanfare and Symphony (shown below). A little on the pricey side but fantastic for that special occasion. So for example if I picked Size I, thigh high with lace top, in vivo, with fanfare crystal embellishment it would cost £117.50 ($209.75 AUD) not including postage. So really only a special occasion eg wedding stocking.


 (Fanfare)
 (Opera)
(Symphony)

Svigardis also have patterned in higher level compression. For example: Allure Patterned Thigh High 20-30mmHg in Indigo below.






And you can't talk about fashion without a bit of classic David Bowie.