Lordy, it's taken me forever to get around to this post. It's been on the cards for ages. Started and stopped, started and stopped. Partly due to slackness. Partly due to a rather prolonged and continuing period of bleechness. Partly due to a lap top that was on life support. But I'm going to pull my finger out. Mr Grumpy has done a MaGyver and created a laptop with a piece of duct tape, a used tissue and a hairy piece of gum he scrapped off the bottom of a table at the local Maccas. He may not be fancy. He may not have speakers. And he may insist that it is still 2010 despite repeated reboots, but technically he is a laptop once more. So I will now put on my Uri Geller hat, and will my fingers and brain to coordinate enough to tap out a couple of sentences on the old dog hair encrusted keyboard.
Time to get away from the "woe is me, life is crap" mantra I've been spouting of late. Time to find my happy place and live in the warm arms of denial for a few minutes.
A few weeks back (well actually a bit longer) I finally met a bunch of fellow Bobettes here in Melbourne for lunch. For a while now we've been in contact on an Australian FB group, with Bobettes coming from all around the country and New Zealand (which, lets face it, really is just another Australian state, although with an above average fondness for their woolly artiodactylan brethren). The Dysautonomia community is very small here in The Land Down Under. Hell you are hard pressed to find a specialist, let alone others in the same leaky boat. But what started out as a handful of people has now stretched to 43 members! Diagnoses are varied, from Postural Orthostatic Tachicardia Syndrome (POTS) and Neurocardiogenic Syncope (NCS) to WTF?, but we have a wee little community who all share a group of pesky symptoms and a body that is not playing the game.
For all of us it was a challenge to get there. Many of us were ill leading up to the day,on the day, and the days after. Some couldn't make it due to bodies that refused to cooperate. Some are now in hospital (checking out the male staff off course, can't keep a good gal down). But I think we would all say it was worth it.
To all who attended I am so glad I got a chance to meet you all in person. To all those who couldn't make it on the day I hope we can meet up on another day. Big love to a strong group of women.
For all Australian's and New Zealanders looking for support come some say hi. FB Group.
Oh I forget to mention, four of us stayed till 6pm! 6PM!! That's like staying out till 3am on a bender, snogging total strangers, dancing with your undies on head, and eating a dodgy kebab from a mobile vendor at a petrol station, type of night for normal folk! (God, I miss those days)
The normal for four hours on one Sunday in January 2011, Michelle :)
In honour of my resurrected lap top I give you, Back in Black, AC/DC.