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Thursday, 27 November 2014

Low High

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Earlier this year I was super excited to head to my first concert in years. I haven't seen a live music act since becoming ill in 2006. ...
Monday, 24 November 2014

One of those days.

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(Image: a painting by Giorgos Rorris, Androniki 2013 oil on canvas 75 x 65 cm. A woman with dark hair sits slumped on a cream and tan l...
5 comments:
Monday, 17 November 2014

Boadicea in comfy pjs and slippers.

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I wrote this a while ago but it still holds true for me.  Whilst in recovery mode I thought I'd put it on a photo of my pasty feet a...
1 comment:
Wednesday, 12 November 2014

When being a woman is an impediment to medical care: Dysautonomia

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(source) In 2007 I was on the search for an answer to a series of unusual and debilitating symptoms that had first developed in 2006...
11 comments:
Tuesday, 11 November 2014

Non-compliant, Empowered Patient, or just plain tired.

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I'm sitting on my bed looking at an unfilled medication script lying on the sheets in front of me. I've had it for a few weeks n...
4 comments:
Friday, 31 October 2014

Julia: Exploring Dysautonomia Through the Arts for Dysautonomia Awareness Month 2014

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( Wonder Woman ) The final piece for Exploring Dysautonomia Through the Arts comes from Julia. I loved this song from the first time I...

Gracey: Exploring Dysautonomia Through the Arts for Dysautonomia Awareness Month 2014

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Next up on Exploring Dysautonomia Through the Arts is, Gracey. Her work perfectly captures the experience of Dysautonomia. The people ...
Thursday, 30 October 2014

Soraya: Exploring Dysautonomia Through the Arts for Dysautonomia Awareness Month 2014

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( Comfort , Edvard Munch 1907) Next up on Exploring Dysautonomia through the Arts is Soraya. Soraya's poem, Comfort , explores...
3 comments: