Living with Bob (Dysautonomia)
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Saturday, 18 January 2014

Weather with You

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Ah Melbourne, I love you but not your weather this past week. Five consecutive days over 40C (104F), followed by a dramatic barometric chang...
8 comments:
Tuesday, 14 January 2014

Planning your travel by toilet: The National Public Toilet Map

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Next week is our big move. We're moving from the city to the country, a 2 1/2 hour trip. Given that the most I've driven for the...
2 comments:
Sunday, 12 January 2014

It's the lack of a permit NOT that they don't 'appear' disabled.

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Some days here on the blog I feel like I am beating my head against a brick wall. I have been writing about invisible illness and the ina...
4 comments:
Thursday, 9 January 2014

Today I went to a cafe.

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Today I went to a cafe. "And.......?" I hear you say. It may not seem a big deal to most...
3 comments:
Thursday, 2 January 2014

Happy songs for less than happy days.

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The last few months have been pretty big on the bleech side of the ledger. I could bore you all stupid (and myself if I'm honest) whilst...
3 comments:
Thursday, 19 December 2013

So it seems I've found my Holy Grail and it's goat-shaped.

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Dysautonomia is a weird collection of illnesses. Even if you are lucky enough to find your subtype (eg Postural Orthostatic Tachycardia S...
24 comments:
Monday, 16 December 2013

And here we are again. *sigh*

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Today this came up in my Twitter feed.  And I felt myself let out a big disappointed sigh. I'm a big fan of Nathan Fillion. Fir...
6 comments:
Sunday, 15 December 2013

Don't touch my wheelchair.

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The past 6mths I have been using Vera, my trusty wheelchair, far more. Distance is my kryptonite. Between weakness, uncoordinated muscl...
7 comments:
Tuesday, 10 December 2013

Clicking my heels for Dysautonomia: Raising funds for The Greg Page Fund for Orthostatic Intolerance and The Baker IDI

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During this year's Dysautonomia Awareness Month I spoke about The Greg Page Fund for Orthostatic Intolerance , Greg Page aka the o...
Sunday, 1 December 2013

Poverty and Riches.

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I've been reading a lot about poverty and health, and poverty and disability. It seems that poorer you are the poorer your health, and t...
12 comments:
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