Living with Bob (Dysautonomia)
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Thursday, 19 December 2013

So it seems I've found my Holy Grail and it's goat-shaped.

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Dysautonomia is a weird collection of illnesses. Even if you are lucky enough to find your subtype (eg Postural Orthostatic Tachycardia S...
24 comments:
Monday, 16 December 2013

And here we are again. *sigh*

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Today this came up in my Twitter feed.  And I felt myself let out a big disappointed sigh. I'm a big fan of Nathan Fillion. Fir...
6 comments:
Sunday, 15 December 2013

Don't touch my wheelchair.

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The past 6mths I have been using Vera, my trusty wheelchair, far more. Distance is my kryptonite. Between weakness, uncoordinated muscl...
7 comments:
Tuesday, 10 December 2013

Clicking my heels for Dysautonomia: Raising funds for The Greg Page Fund for Orthostatic Intolerance and The Baker IDI

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During this year's Dysautonomia Awareness Month I spoke about The Greg Page Fund for Orthostatic Intolerance , Greg Page aka the o...
Sunday, 1 December 2013

Poverty and Riches.

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I've been reading a lot about poverty and health, and poverty and disability. It seems that poorer you are the poorer your health, and t...
12 comments:
Thursday, 28 November 2013

Pay it Forward: Dysautonomia style.

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One thing I have learnt about the chronic illness community is that it is filled with many wonderful and generous people. The support ...
4 comments:
Wednesday, 27 November 2013

Giving in or taking control?: Mobility aides.

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(I've loved this chair since I first saw it a year or two ago. It belongs to  Italian art director  Fabrizio Sclavi . Full photos can...
11 comments:
Sunday, 24 November 2013

That time I got waaaay too excited about medical tape: 3M Nexcare Sensitive Skin Low Trauma Tape

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My track run with medical tapes, or more precisely medical adhesives, has not been a good one. Prior to becoming ill this wasn't a hug...
8 comments:
Friday, 15 November 2013

Health Activist Awards: And what's in a photo?

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Wego Health's Health Activist Awards are open to nominations at the moment. You can nominate for everything from Best in Show: Blog ...
1 comment:
Monday, 11 November 2013

Treading water

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( source ) Some days it feels like I'm treading water. Or maybe it's mud. it certainly feels heavy and confining enough to be m...
4 comments:
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