tag:blogger.com,1999:blog-6181780691238814823.post9097249208778662378..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Mummy Dearest: Mothering with a Chronic Illness.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6181780691238814823.post-74529494344834181572011-06-19T21:49:39.766+10:002011-06-19T21:49:39.766+10:00MuseOddity - I love your attitude. I think being ...MuseOddity - I love your attitude. I think being sick makes you review all aspects of your life. Finding out what truly makes someone feel loved or valued is precious. I know with my kids they know what it takes for me to participate in life so they value it when I can. They know it is love that makes me stretch myself and pay for it to be there. It's not the ideal situation but at least they know how much I love them. I just wish they didn't have the stress of it. Good luck with your new addition. ;)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-50591257557782182342011-05-06T21:19:01.392+10:002011-05-06T21:19:01.392+10:00I am struggling with these same issues. My son is ...I am struggling with these same issues. My son is two and half and he has only known a mommy that was "sick". At two he knows if I turn pale and sit down suddenly to ask if "mommy's heart goes fast" and he even brings me my blood pressure cuff and stethoscope. It pisses me off that he knows things no two year old should ever have to think about. He constantly asks me how I am feeling today. Now I am 33 weeks pregnant with his sister and while I am sooo excited to complete our family I am sad that I know she is coming into the same situation as her brother. It is a vicious cycle of guilt that will eat you alive if you let it. Truth is I am there for my son even if it is playing a quiet game on the couch, he knows how much he is loved, I dedicate every waking moment to making the best life possible for him. At the end of the day I tell the guilt to shove it because everyone in my house is going to bed feeling loved and that is what matters to me.MuseOddityhttp://www.museoddity.wordpress.comnoreply@blogger.com