tag:blogger.com,1999:blog-6181780691238814823.post8998627671249212637..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): How the other half live.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6181780691238814823.post-78959820807780581852015-04-19T12:55:08.861+10:002015-04-19T12:55:08.861+10:00I empathise Michelle. Yep. I can empathise. I'...I empathise Michelle. Yep. I can empathise. I'm actually thinking about giving myself old fashioned style enemas because I find the chemist ones cause my skin to go red and burn and not just around the anus (I was going to go all euphemistic but decided to call an anus an anus). Anyway, I have the same reaction to them that I have to chocolate and miscellaneous other food stuffs and many meds.<br /><br />To the commenter who has had the anorectal function study with the view of the Sydney Harbour View...I've been there, too. Literally. I passed the tests Damn it! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-48617642982308549032015-04-14T05:11:00.641+10:002015-04-14T05:11:00.641+10:00Ah dear Michelle, life really is sh*t when you hav...Ah dear Michelle, life really is sh*t when you have to do your own colonic, hollywood divas would never stand for it! As a lady I felt I at least had that orifice as a secret for myself until my gut issues started, somewhat dampens any lingering marital mystique when being quizzed about your 'movements' with your partner sitting in on 'medicals' coz of brain fog! Loving Rachel's warped humour as always 🙉🙊. Tricia xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-55641826088735291922015-04-13T15:17:13.441+10:002015-04-13T15:17:13.441+10:00I had a test done to measure to dryness of my eyes...I had a test done to measure to dryness of my eyes the other day, with an optometrist who was clearly trying to be very nice and sympathetic by saying how awful it must be to have to have it done. I had to break it to her that having a piece of blotting paper in my eye for five minutes probably didn't even make it into the top 10 unpleasant, uncomfortable and/or undignified things I have done to me in the name of this illness. Top of the list is the anorectal function study - I can never look at the Sydney Harbour Bridge the same way after it was the very lovely view while I had all manner of things inserted and extracted 'where the sun don't shine' by a very nice nurse. At least enemas happen in the privacy of my own bathroom!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-50482880330098211262015-04-13T13:42:44.849+10:002015-04-13T13:42:44.849+10:00Ah Michelle! No matter how many times you have to...Ah Michelle! No matter how many times you have to do it, it is never never okay. It always takes a mental moment, a 'deep breath' and afterwards, quiet apologies to your own nether regions. It is awful, unpalatable, unfair. But desperation will take you there with relentless insistence. I wonder at what point it will become easier. Will it ever? I love that you have written about it. I find writing this stuff out to be far more relieving even than enemas themselves. <br />Here's a joke for you: What do constipated mathematicians do?<br />Work it out with a slide rule.<br /><br />! ew ! bahahaha. Thanks for another great post. :-)Anonymoushttps://www.blogger.com/profile/11573990403405303936noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-43362171516019842292015-04-13T13:36:24.709+10:002015-04-13T13:36:24.709+10:00Ah, as always, you write me. When daughter last vi...Ah, as always, you write me. When daughter last visited she saw the poo stool and bucket next to the loo (I had forgotten to hide them even from her). Her comment? "Living the dream Mum". It made me realize how we desensitize ourselves to our living condition. It is normal for me to throw up into the bucket mid sentence then continue as if I hadn't. That's normal for me. Doing what you are doing is also normal for me. Things that would freak others out are my normal. As you said we do what we have to do and I guess if we \thought about it too much it would freak us out too. it helps to live online. I look normal online. I look so normal from the outside.<br />Caroline xxxAnonymousnoreply@blogger.com