tag:blogger.com,1999:blog-6181780691238814823.post8675160225057099583..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): HardMichelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-6181780691238814823.post-54712670195317304742014-04-21T10:34:06.588+10:002014-04-21T10:34:06.588+10:00Michelle, while I was reading your post, it brough...Michelle, while I was reading your post, it brought tears to my eyes! One, because I understand from personal experience how much you are suffering, and two, because I am you. Your expressions are eloquent, disconnected and yet present to the world in such a beautifully articulate way how this disease horribly affects the many who suffer from it. Take heart, though, one day, all our sicknesses will be a thing of the past. Build faith in the promise of God when He says at Isaiah 33:24 "No resident will say 'I am sick.' Those dwelling in the land will be pardoned ... "<br />My thoughts and prayers are with you.Anonymoushttps://www.blogger.com/profile/12398315958444020859noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-61229865062315412752014-02-14T01:02:11.629+11:002014-02-14T01:02:11.629+11:00"Crushing" is a word I sometimes use for..."Crushing" is a word I sometimes use for the deep weakness/fatigue/malaise/pain that means (for whatever reason) I'm at rock-bottom, again. Rock-bottom is a relative thing. "Rock bottom" of twenty years ago would be a great day by current standards. "How are you?" continues to be a tough question. Compared to what? <br />I admire and salute your continued ability to string words together from underneath a mountain of HARD. Amyhttps://www.blogger.com/profile/00068671443994496718noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-68083026335695686282013-10-11T19:28:18.332+11:002013-10-11T19:28:18.332+11:00Michelle, as much as you are our inspiration and s...Michelle, as much as you are our inspiration and support, we are not your first priority, and if you don't think of yourself first sometimes I would certainly be Very worried about you, no-one else is going to breathe for you so go and concentrate on it girl. Wishing you renewed strength xAnonymoushttps://www.blogger.com/profile/15309828431703333808noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-36041860363646362492013-10-11T14:22:36.727+11:002013-10-11T14:22:36.727+11:00So very well put. It's perfect. I hope the wor...So very well put. It's perfect. I hope the worst passes soon :(Julia Knoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-83873603522248001482013-04-23T20:38:51.494+10:002013-04-23T20:38:51.494+10:00Thanks Ilana. High fives from this side of the pon...Thanks Ilana. High fives from this side of the pond xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-35852283876652253262013-04-23T20:38:25.956+10:002013-04-23T20:38:25.956+10:00Thanks Brahm. If only the words weren't always...Thanks Brahm. If only the words weren't always so hard xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-63217758902661664412013-04-23T20:38:05.299+10:002013-04-23T20:38:05.299+10:00Thanks Anna xxThanks Anna xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-46015141251188795792013-04-23T20:37:37.268+10:002013-04-23T20:37:37.268+10:00Ah the flu feeling I understand that all too well....Ah the flu feeling I understand that all too well. This is like living with a permanent flu state. The breathing thing always gets me. You'd think concentrating on it would make it easier but nope makes it so much harder. Weird bodies. xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-70142642159427560902013-04-23T20:35:15.511+10:002013-04-23T20:35:15.511+10:00Aw thanks hon. It is finally passing thankfully th...Aw thanks hon. It is finally passing thankfully though I'm still a bit tired. Can't wait for tomorrows infusion. xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-87560578317739027882013-04-23T20:32:47.025+10:002013-04-23T20:32:47.025+10:00Thanks Rach. It is comforting to know all the supp...Thanks Rach. It is comforting to know all the support I have a round the world. The community that has sprung up around the blog has been an unexpected joy xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-40044330653496599652013-04-23T20:31:26.441+10:002013-04-23T20:31:26.441+10:00Thanks Cathy xx It is lovely to head out now and t...Thanks Cathy xx It is lovely to head out now and then and participate in life but the toll can be so hard to deal with. It would be lovely to do it just once without the the payback. Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-79763508348577498112013-04-22T14:24:06.357+10:002013-04-22T14:24:06.357+10:00Amen, Sister. Amen.Amen, Sister. Amen.Ilana Jacquelinehttp://www.letsfeelbetter.comnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-32432248262996461942013-04-22T11:29:39.819+10:002013-04-22T11:29:39.819+10:00Words are good, and touching and important.... tha...Words are good, and touching and important.... thanks for posting!Anonymoushttps://www.blogger.com/profile/11883394577835241921noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-73506532636676551402013-04-22T02:58:29.280+10:002013-04-22T02:58:29.280+10:00<3<3<br />Anonymoushttps://www.blogger.com/profile/01080085330558065237noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-37382689175818949782013-04-22T02:34:46.592+10:002013-04-22T02:34:46.592+10:00get where your coming from. this will pass, I get...get where your coming from. this will pass, I get the breathing bit so well. if anything interrupts you mind from breathing you are messed up, you need to concentrate so hard, its beyond belief. <br /><br />I was sitting outside today sipping tea at the table, feeling like I had flu, all the life had been sucked out of me, yet this is a good day! <br /><br />hope you wont take long to get over this bump in the road. appreciate the small things, find humour in things. take careemhttps://www.blogger.com/profile/14196652412958890367noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-38926831647164626742013-04-21T22:20:09.492+10:002013-04-21T22:20:09.492+10:00Even where you are, you find all the words i never...Even where you are, you find all the words i never have. Even when you can't do anything, you are wonderful. Hoping this passes quickly for you, xxBuffy Darlingnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-8533505739013628272013-04-21T16:22:22.679+10:002013-04-21T16:22:22.679+10:00This reads like freeform poetry Michelle. Even as...This reads like freeform poetry Michelle. Even as tired as you are you've still got it! Love your writing. Take heart as you take those breaths between here and the old normal. There are lots of us empathising with you and journeying with you.<br />Wishing you restful sleep.<br />RachAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-7496494062510308062013-04-21T15:39:31.779+10:002013-04-21T15:39:31.779+10:00Sweetie...get lots of rest & be kind to yourse...Sweetie...get lots of rest & be kind to yourself. I know I'm amazed to have a good day & than have to recharge for what seems like weeks to have what I once considered a normal day. I would take that cupcake, but I'm also diabetic on this journey...hard headed & still no insulin. Bless you on this journey!!Cathy Hickmanhttps://www.blogger.com/profile/14049383644389022965noreply@blogger.com