tag:blogger.com,1999:blog-6181780691238814823.post8388540966041702473..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Teen POTS and the case of the missing hand.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6181780691238814823.post-13321178309350060182012-11-01T14:48:18.818+11:002012-11-01T14:48:18.818+11:00You rock. Ur attitude has actually helped me tonig...You rock. Ur attitude has actually helped me tonight. I am the big 40 and have pots. Dealt with it forever. Last month I started having myclonic jerks. Went to a neurologist and my primary care physician. He told me today as I was sitting on his table jerking uncontrollable with my purple feet hanging and a resting heart rate of 123 that the jerking and joint pain and muscle pain and the lace like rash all over my body was all in my head and has prescribed klonopin and an anti depressant. But I'm still standing. Took a little fall today but hey we all trip every now and then. Now its time to find someone who will actually listen to me instead of thinking its all in my head ;) went through this over 10 years ago when they finally figured out it was "POTS" So like u I am a pothead too? angiekeellvn@gmail.com if anyone can help!Anonymoushttps://www.blogger.com/profile/04420538585480594609noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-54014051011825768582012-03-27T16:22:17.968+11:002012-03-27T16:22:17.968+11:00Hey it's Emma from Chicago, USA. Great blog, g...Hey it's Emma from Chicago, USA. Great blog, girl, keep writing! I will be stalking around for some tips all POTSies can use. I was diagnosed at 18 and am now 21...things have gotten a lot better in that time. Keep in touch - i'll be back! :-)Emmahttps://www.blogger.com/profile/15281453382262008726noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-27465321083413127212012-03-27T14:16:41.759+11:002012-03-27T14:16:41.759+11:00Enjoyed your POTSy humor. Your mom is right, &quo...Enjoyed your POTSy humor. Your mom is right, "You have to laugh or you will cry."Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-32673293239498941452012-03-27T06:27:11.321+11:002012-03-27T06:27:11.321+11:00Rhianne-You are quite amazing!!Rhianne-You are quite amazing!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-55829533486831322492012-03-27T06:06:58.290+11:002012-03-27T06:06:58.290+11:00Rhianne's mum here, love your post sweetie. Th...Rhianne's mum here, love your post sweetie. This disease is horrible but sometimes amusing. You have to laugh or you will cry.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-88783916215293292682012-03-26T21:06:23.946+11:002012-03-26T21:06:23.946+11:00Great work, Rhianne! I really love that you put a...Great work, Rhianne! I really love that you put a lighter edge to your blog. Hang in there - you are truly amazing!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-54155664820317539972012-03-26T16:38:16.341+11:002012-03-26T16:38:16.341+11:00Gorgeous blog! Good luck to you Rhianne, I hope al...Gorgeous blog! Good luck to you Rhianne, I hope all goes well in school. I admire all teens with POTS. You have so much to deal with at your age. Your peers wouldn't know the half of it.Anonymousnoreply@blogger.com