tag:blogger.com,1999:blog-6181780691238814823.post7098594489563118574..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): One day.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-6181780691238814823.post-67825187863932460882011-07-30T15:45:20.536+10:002011-07-30T15:45:20.536+10:00Em - that sounds so lovely. Walking, that seems su...Em - that sounds so lovely. Walking, that seems such a lifetime ago.Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-51411992021282931552011-07-30T15:44:26.963+10:002011-07-30T15:44:26.963+10:00Neuropoet - normal sounds lovely.
Diana - Vegas w...Neuropoet - normal sounds lovely.<br /><br />Diana - Vegas would be brilliant. I so want to go there one day.Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-90892050640308857522011-07-29T04:14:46.882+10:002011-07-29T04:14:46.882+10:00you know what michelle, i would just walk. walk u...you know what michelle, i would just walk. walk until my tootsies could take no more. i would take some lunch in a knapsack, some tea, rosy could come to, (ive never walked her without me being in the wheelchair) head through the woods, smell the earth, admire pretty wild flowers. have lunch with a view, and appreciate the scenery. <br /><br />xxxemhttps://www.blogger.com/profile/14196652412958890367noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-11658967543291140512011-07-27T20:13:43.152+10:002011-07-27T20:13:43.152+10:00I would travel to Vegas and then Mykonos if I coul...I would travel to Vegas and then Mykonos if I could! Miss having the freedom to travel overseas.Diananoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-35112018920788172712011-07-27T15:54:08.566+10:002011-07-27T15:54:08.566+10:00Wow. What would I do? I would be me again. :) The...Wow. What would I do? I would be me again. :) The old me who could go, go, go all day. I'd play my guitar, play the piano, sing, go for a hike, visit with friends and family... talk, talk, talk without getting out of breath or overwhelmed with sensory input. <br /><br />I would just revel in being normal... :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-91168570319874315132011-07-26T14:49:56.543+10:002011-07-26T14:49:56.543+10:00Elly Lou - I know you would, and that's why I ...Elly Lou - I know you would, and that's why I love you :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-86128377729392959082011-07-26T14:49:19.083+10:002011-07-26T14:49:19.083+10:00Anon - Making the plans can be part of the fun. S...Anon - Making the plans can be part of the fun. Sometimes we all need the nudge, me included. It's easy to get overwhelmed by it all when you are sick 24/7. :)<br /><br />Raven/Missy - Thanks for your lovely comment Missy. Fingers crossed we'll all get a chance to just be for at least one day :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-59189960898511127592011-07-26T02:31:08.197+10:002011-07-26T02:31:08.197+10:00My dream too, just one day..to just be and do thin...My dream too, just one day..to just be and do things like that. What I wouldn't give for it....your writings are wonderful Michelle, maybe you should submit some for magazines or a book?Raven/Missyhttps://www.blogger.com/profile/15502412577584236318noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-62040090798973460802011-07-25T23:58:19.179+10:002011-07-25T23:58:19.179+10:00If I could trade you one...I would give my day to ...If I could trade you one...I would give my day to you, pookie.Elly Louhttp://www.bugginword.comnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-27042689874240068402011-07-25T11:35:55.351+10:002011-07-25T11:35:55.351+10:00There are so many pots-free days I could plan. It ...There are so many pots-free days I could plan. It has affected my life on so many levels. (no woe is me, here, I know you all have the same challenges)<br />Thank you, "Rusty," for giving me the nudge to think of these, I have to think, in order to maintian that small thread of sanity I have left, that someday I will do all of these, on a daily basis, devil may care...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-32400881160242742082011-07-25T10:13:03.279+10:002011-07-25T10:13:03.279+10:00Michele - a day in the mountains would be lovely, ...Michele - a day in the mountains would be lovely, and I think we all need to keep our fantasies about these things. :)<br /><br />Anon - Your day sounds lovely. Here's hoping we all get that day at some point. :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-69523745874645553132011-07-25T10:08:49.519+10:002011-07-25T10:08:49.519+10:00Katrina - I wish I could make your day come true f...Katrina - I wish I could make your day come true for you. Your wedding day will be wonderful though, because it is yours and Bob can never take that away. <3Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-40990821108669396862011-07-25T05:59:51.665+10:002011-07-25T05:59:51.665+10:00I would get up early. Jumping out of bed. I would ...I would get up early. Jumping out of bed. I would make a big breakfast for my family, pack a lunch and spend the day outside no matter how hot or cold it is. I'd play with my son and do what ever he wants to do. I'd be the fun mom I always wanted to be.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-32680139048640298102011-07-25T01:10:28.385+10:002011-07-25T01:10:28.385+10:00Your Bob free day sounds amazing! I guess all of u...Your Bob free day sounds amazing! I guess all of us have fantacies of what we would do on a Bob free day. I would drive to the mountains and go hiking. My dysautonomia crash began with a hike in the mountains. Still praying for a cure.Michelehttps://www.blogger.com/profile/17663301663090103466noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-31791762223042121972011-07-24T23:52:18.786+10:002011-07-24T23:52:18.786+10:00Oh Michelle that sounds so lovely! What a perfect ...Oh Michelle that sounds so lovely! What a perfect day! Makes me want to make a trip to Melbourne now!<br /><br />Gee, can I chose which day I dont have POTS/dys? Like plan ahead? I guess I can because this is my own little fantasy right!<br /><br />I would have a POTS/dys free day the day I'm getting married. I could get up early (early= before midday), shower standing up, and eat a big breakfast without worrying about it promptly coming out of either end or fainting or having to rest in between each activity. I wouldn't have to try to chug down 2 litres of water and electrolyte mix before the ceremony and feel all water-bloated. <br /><br />Hell, I could even stand up for the ceremony! and all the photos, and the canapes/drinks, and mingle with all the guests and not have to worry about finding the nearest seat, pacing myself and resting and sitting down. <br /><br />I would have several glasses of champagne (it is my wedding day of course) because alcohol wont make me woosy or lower my blood pressure. I wont have to worry about trying to squeeze into compression stockings for the reception at night to give me a bit more staying power. I can wear ridiculously high heels and manage to walk in them without getting joint pain or falling over whilst sober. <br /><br />Of course, I can definately manage to have a first dance with my husband, and my dad. In fact I can spend the rest of the night carving up the dance floor and not get tired or dizzy or short of breath, not one little bit. <br /><br />*SIGH* Shame my POTS wont piss off on my wedding day, but I'm still going to get married all the same damn it!<br /><br />KatrinaAnonymousnoreply@blogger.com