tag:blogger.com,1999:blog-6181780691238814823.post5401475620165257440..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): FATigue.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-6181780691238814823.post-6661565090515409282013-12-31T05:20:26.073+11:002013-12-31T05:20:26.073+11:00I remember talking to a doctor about fatigue sever...I remember talking to a doctor about fatigue several years ago. His response to me was, "Well, we're all tired." It's weird when I think about how fatigue started changing my life. There would be certain things I'd like to do but I'd be too tired and I'd think I'd do them next week when I have more energy. Then one day I realized that it's been over a year since I went to this movie theater or seen this person.Hugh Moorehttps://www.blogger.com/profile/13195275217440449531noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-81314964901452931162010-11-05T13:10:21.034+11:002010-11-05T13:10:21.034+11:00Jodie - hey there fellow Aussie. We are few and f...Jodie - hey there fellow Aussie. We are few and far between. Did you know that there is an Aus FB support group now? Here's the link http://www.facebook.com/home.php#!/group.php?gid=270234122634 <br /><br />You often here of a link between pregnancy and symptoms starting, strange. That wasn't the case for me, still don't really know why. Glad you stopped by and hope the migraines have passed. :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-24694422856589478842010-11-05T13:07:26.018+11:002010-11-05T13:07:26.018+11:00Achelois - washing your hair is over-rated, I'...Achelois - washing your hair is over-rated, I'd much rather have a manky birds nest on my head and simply listen to Kate Bush.<br /><br />Sandra - 40C ugh! I grew up in an area where that was our normal summer temps (hit 50C once). Now I can't imagine living in that type of climate again.<br /><br />Robin - it seems like such a constant for us. And I get the weight gain. I was the same weight from 18 - 33, then I got sick and now I've stopped weighing myself as it's too depressing.<br /><br />Kelley - you have had a shitload of shit on your plate of late I think you have earned the right to hibernate for the next 6 months.Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-5932492998356697232010-11-05T13:01:40.894+11:002010-11-05T13:01:40.894+11:00Ash - why are the only options wide awake or coma?...Ash - why are the only options wide awake or coma? Stupid disorder.<br /><br />Elly Lou - dictionary.com is the antichrist, or at least one of those people who push in front of you when you're lining up at the deli. Pure evil.<br /><br />Diana - fatigue does have that whole zitty butt thing built in.<br /><br />Michele - I know. Not just tired but muffin top too. You suck universe.<br /><br />Erika - I'll take that Winter any time you want to post it. :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-31859520092679873042010-10-20T21:15:08.178+11:002010-10-20T21:15:08.178+11:00Hi Michelle
I discovered your Blog while doing res...Hi Michelle<br />I discovered your Blog while doing research on the internet. I am also an Australian mother of 4, who is almost 36 years old who has "Bob". I love your witty way of describing how I feel. I have been diagnosed for some 8 years now, since the birth of my 3rd daughter. <br /><br /> I can relate to how you feel and am glad to of found your blog as I am going through a particularly bad patch now and as I am recovering from a 5 day migraine I can't type a lot right now. I would love to get in contact with you, as I don't have my own blog. I know how hard it is to find a friend our age who understands what it's like to live like this. I will try and tell you my story another day when I'm feeling a little better.<br /><br />Sending you healing & more importantly coping thoughts<br /><br />JodieJodiehttps://www.blogger.com/profile/17388795977674792889noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-11124809816427739052010-10-10T09:58:23.365+11:002010-10-10T09:58:23.365+11:00Oh Girl...
I have become increasingly frustrated ...Oh Girl...<br /><br />I have become increasingly frustrated with of my lack of energy and going to bed BEFORE my children, but I know this is a temporary thing and it will pass as my body heals.<br /><br />So a taste of what you are going through. I can't even imagine how hard it is for you knowing this is the status quo.Kelley @ magnetoboldtoohttp://magnetoboldtoo.comnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-37883771396178226362010-10-05T03:10:09.793+11:002010-10-05T03:10:09.793+11:00I logged onto my blogger dashboard with the though...I logged onto my blogger dashboard with the thoughts of what I was going to blog about today. Just a few minutes prior I had been shedding a few tears over how fatigued and sore I am while trying to get things done that my husband didn't get done over our busy weekend. Sure enough, you had just written this post yesterday. So, needless to say, I completely feel where you're coming from.<br />I definitely feel as though FATigue has set in on my end (my back-end that is). Being a former-runner (of half marathons at that), I used to be in excellent shape. Ever since "bob" set in last Dec., I have gained at least 20lbs. Bleh! So, as usual, you are definitely not alone.Robinhttps://www.blogger.com/profile/12809476923136659551noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-19506931835763341242010-10-04T13:30:14.419+11:002010-10-04T13:30:14.419+11:00Oh, I sweat for you if 19C is wearing you down! W...Oh, I sweat for you if 19C is wearing you down! We here in SW US desert are (hopefully) finishing our summer soon. Today is the first day where the high didn't reach 100F/40+C. People here laugh as I scurry in my slow fashion under an umbrella with ice packs on my neck to the store from the parking spot I will circle the lot to get closest to the door. But as our season winds down, I have sympathy to share for someone's whose summer is just starting.Sandra Keehttps://www.blogger.com/profile/16979912092987681396noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-52674733255712848362010-10-04T13:10:05.281+11:002010-10-04T13:10:05.281+11:00I too am old enough to remember Kate Bush original...I too am old enough to remember Kate Bush original.<br /><br />I missed all of yesterday in bed asleep. Husband is finding me tiresome. ha I am finding me tiresome. Sleeping is tiring me out. I keep disappearing to sleep more. How weird you said about heart failure I lay in bed yesterday wondering if that is in fact what I do have. Only the people in bloggy land that 'get it' get that I am not a hypochondriac. <br /><br />Exhaustion sucks. Too friggin tired to wash hair. If anyone replies to this and mentions good sleep hygiene I will scream loudly. Do people not get it. If that had worked i would not be writing this.<br /><br />You write how I feel.<br /><br />xoxoooxoxAcheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-13641320425446291852010-10-04T12:52:31.208+11:002010-10-04T12:52:31.208+11:00I'm sorry you're feeling so fatigued! Bei...I'm sorry you're feeling so fatigued! Being in the States, I'm so glad that it's fall, and cooling off. It almost (note, I said *almost*) makes up for the really horrible summer with over 60 days of <90F (or around 32C), and many of the days had a heat index of around 115F (46C). Damned humidity!<br /><br />Anyways, I am hoping your summer isn't nearly as bad, and I see about sending some of my upcoming winter to you.Ericka McCartyhttps://www.blogger.com/profile/14541156855048563140noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-82249780207144448932010-10-04T12:34:42.759+11:002010-10-04T12:34:42.759+11:00Fatigue is the pits Michelle, it feels like a cons...Fatigue is the pits Michelle, it feels like a constant for me. And FATigue does bring on the fat, because you are too FATigued to do anything but sit, hense the fat!Michelehttps://www.blogger.com/profile/17663301663090103466noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-50526068383948130722010-10-04T12:17:37.299+11:002010-10-04T12:17:37.299+11:00Ah Fatigue.... it is the pimple on Satan's bot...Ah Fatigue.... it is the pimple on Satan's bottom... I'm over it too!Diananoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-91402810734938590422010-10-04T11:31:35.056+11:002010-10-04T11:31:35.056+11:00Look at that dictionary.com fucker getting all dic...Look at that dictionary.com fucker getting all dictatorial. The good news is you can play a kazoo flat on your back. Even if you use your mouth!Elly Louhttp://www.bugginword.comnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-346109577166876722010-10-04T11:14:56.604+11:002010-10-04T11:14:56.604+11:00Ahh sorry to hear! I agree pots comes w fatigue a...Ahh sorry to hear! I agree pots comes w fatigue anyway, we don't need any extra! I go through phases where I either can't sleep at all, or all my body wants is to sleep. Hope it passes soon!Anonymousnoreply@blogger.com