tag:blogger.com,1999:blog-6181780691238814823.post5044574793532131342..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Tabula RasaMichelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6181780691238814823.post-65105886488469322512013-08-19T23:01:28.064+10:002013-08-19T23:01:28.064+10:00It never ceases to amaze me how you always seem to...It never ceases to amaze me how you always seem to know exactly how I am thinking or feeling, yet don't have the talent to put it into words that others can understand. Thank you for saying what I wish I could. Such a rare and wonderful talent you have for seeing into the hearts of others and being able to express it! CarlaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-91902615273860292622013-04-02T18:02:52.846+11:002013-04-02T18:02:52.846+11:00I'm going to go with your thinking painpositve...I'm going to go with your thinking painpositveUK. It's a burden we all have to carry, this super-fabulousness! :DMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-14120367768950159522013-04-02T18:01:11.308+11:002013-04-02T18:01:11.308+11:00I so sorry it has gotten to the point that you had...I so sorry it has gotten to the point that you had to resign from work but am glad you are focusing on you. It's hard to do sometimes but it is one thing we can do for ourselves. Funny that so many of us seem to have been perfectionists. I know I put a lot of pressure on myself for a long time and it only made things worse. It is really hard to let go of that mindset though. Big hugs to you and hoping that this the start of a new and wonderful beginning. xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-28732534653944187682013-04-02T17:57:03.701+11:002013-04-02T17:57:03.701+11:00I agree Elettaria. There really has been a change ...I agree Elettaria. There really has been a change in the way society responds as a whole and it's quite a sad development. For me I know I can tell someone exactly what I think and what they can do with their crap comment, but I feel for those who don't feel able to advocate for themselves. I think more of us are getting more confident to say something, but unfortunately the level of overt aggression from others also seems to be increasing. Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-68990568045742757642013-04-01T01:49:39.038+11:002013-04-01T01:49:39.038+11:00Hello. A good post, and I feel sad for people who...Hello. A good post, and I feel sad for people who would judge others for having an illness, those poor fools. I, too, often take the smallest negativities to heart, but I try and remind myself that people too often don't comment at all when you look good / do something good / say something clever, maybe because they put that down to you just 'being you', but are all too quick to point out when you look a bit less good / do something a bit less good.. So basically what I'm saying is that people around you are probably just so used to your total fabulous-ness that they only remark when it drops a little from super-fabulous-level. That's how I choose to see it anyway!! :DAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-91259936737927094222013-03-21T20:46:07.598+11:002013-03-21T20:46:07.598+11:00As always a wonderful post.
I've had POTS fo...As always a wonderful post. <br /><br />I've had POTS for so long but my school friends, teachers, employers & colleagues never understood, I've always tried to be perfect at everything, which is impossible for anyone let alone anyone with a chronic illness. <br /><br />This led to depression & anxiety getting unbearable. I suffered throughout school and university but in July last year after having had so much time off with my POTS, not being able to achieve perfection, not having the energy after work to come home and cook led me to being severely depressed and anxious again and have had to be off work since then. But I started the process of sorting out my priorities. I have some great friends and family but have removed the critical ones from my life.<br /><br />I resigned from my job this week as no matter how many letters my doctors wrote about my depression & POTS they didn't understand. So now I'm going to focus on me, find something that fits around my POTS and work on realising that even if I can't always be perfect, I still have worth.JamJarhttps://www.blogger.com/profile/03713235659783859881noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-86922535346122260642013-03-21T00:03:25.191+11:002013-03-21T00:03:25.191+11:00Good post. Also remember that behaving in this way...Good post. Also remember that behaving in this way to someone disabled is discrimination, and may be hate speech or abuse. It should be no more acceptable than racism or homophobia. Yes, it's horribly common in today's society, but that doesn't mean we should accept it as normal or start wondering what is wrong with us. As with some other manifestations of social inequality, such as sexual violence, it's become standard to blame the victims and examine their behaviour for signs that they "deserved it", usually in such a way that whatever they do, it's wrong. We need to be looking at the perpetrators, identifying what they are doing wrong, calling them out for it, holding them responsible.<br /><br />For instance, I once saw a forum post by a young woman who was distresses that her school friends were publicly rude to her when she went out with her snazzy new walking stick. I was horrified to see some people responding with, "well, maybe they didn't like your walking stick, you did say that it was brightly patterned, after all." They should have been saying, "That's outrageous, there's no excuse for such behaviour."Anonymousnoreply@blogger.com