tag:blogger.com,1999:blog-6181780691238814823.post3986728155373685053..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): The Trick is to Keep Breathing.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-6181780691238814823.post-74355448387399307022014-12-21T13:04:24.142+11:002014-12-21T13:04:24.142+11:00Beautiful writing...A candle in the window to lead...Beautiful writing...A candle in the window to lead a weary traveler to safety. Love these songs.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-39978011539940677792011-11-09T17:03:30.856+11:002011-11-09T17:03:30.856+11:00Mel - here's the link http://50kforawareness.b...Mel - here's the link http://50kforawareness.blogspot.com/ Good luck with it.Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-57372070735337647652011-11-09T17:02:16.556+11:002011-11-09T17:02:16.556+11:00Veg - thanks babe. Yeah I'm tossing up between...Veg - thanks babe. Yeah I'm tossing up between 50,000 words or gorging on chocolate and potentially margaritas given how hot it is. Now that would really show Bob!<br /><br />Achelois - I think we'd have a ball too. Damn, distance. Cardio actually said I'm not fit to fly yesterday. Kinda knew it, but it did shit me to hear it. Even if it was unlikely to happen before, I at least had the delusion of being able to travel to meet all my bloggy friends. It's hard to see others going all out on the awareness front, but I know that like you I just can't. I don't have it in me physically, let alone emotionally at the moment. You aren't less babe. I figure we don't have to be all things for all people. Sometimes you have to leave that stuff for others and just do what you can. Plus, when you have so little energy you have to spend it on the essentials of getting through day to day. Sometimes everything else has to wait. I say all this knowing that I beat myself up on a regular basis. Diddly Squat sounds good at this stage xxxxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-81526677529431889662011-11-09T16:54:12.728+11:002011-11-09T16:54:12.728+11:00Rachel - yeah there's no way I'll make 50,...Rachel - yeah there's no way I'll make 50,000. I'm not particularly well at the moment and have a lot of other stuff going on. I'm always impressed by those who manage it.<br /><br />Miss CC - sorry you are having such a rough time at the moment. Sometimes you need to make a conscious effort to find a way through. I'm good at it some days and bad others. I hope you get some relief soon :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-19422485202952141992011-11-09T02:23:29.930+11:002011-11-09T02:23:29.930+11:00How does one become part of the 50k awareness proj...How does one become part of the 50k awareness project? i am having difficulty finding info on it...Melle@featheredruffles.comhttps://www.blogger.com/profile/11185461198950443959noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-12883813838358302462011-11-03T12:14:07.008+11:002011-11-03T12:14:07.008+11:00This is probably why I don't post much anymore...This is probably why I don't post much anymore, by the time I have gone through what you describe so eloquently I haven't the heart. Also all of sudden over here in the UK personal blogs that I followed became campaign blazing trails. Because of the way the benefits system is nowadays over here in the UK with regard to those with disabilites and illness many changed. Instead of personal blogs about individual journeys started to make me feel inadequate, guilty for not being able to be like them, sick but empowered not only to blog prolifically but selflessly attend rallies, badger politicians etc. I felt overwhelmed. Filled with a secret self loathing that I too wasn't standing up to be counted along with them. My blog went silent and has pretty much stayed that way for months. <br /><br />I would prefer anyday, that you blog for you, for what is in your personal energies best interest than exhaust yourself for the percieved greater good. A link is fine to the cause in times when you don't feel up to the challenge. Even if you never do anything other than link or mention it in passing, its just fine. Those of us that understand just how hard your illness is would get it if you simply left a blank post for us I believe. Knowing it would mean you felt too crap to put JackS&^t into words.<br /><br />Your post explains how I feel so much of the time. Maybe just maybe it will go a long way toward me getting my blogging mojo back. Now I have said one of the big reasons I lost it. Say that on my own blog, just couldn't get the words out. Now I read daily that these noble people have become even sicker because they have exhausted themselves. It doesn't help my guilt or feelings of helplessness as I fail each day sometimes to even get dressed until the afternoon, wracked with pain. I let my immediate family down daily because of my chronic condition and its many faces. To fail them further for the bigger picture is just too much for me. Perhaps its the way its meant to be and I should just stop overthinking.<br /><br />Michelle, I just wish you weren't so far away. Imagine the fun we could have spending an afternoon doing diddly squat (something my gran would say meaning 'doing nothing')Now that is a massive compliment because I don't really even see my friends over here in the UK anymore, as their lives are busy and mine is just a whole lot like yours.<br />signing off finally a fellow blogger who just thinks the idea is good but without the energy it becomes a drain on your few resources. Don't worry about it, put it to the back of your mind, watch a comedy and laugh. Or just laugh if multitasking wears you out.<br />xoxoxoxoAcheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-45887041320973333862011-11-02T23:11:45.815+11:002011-11-02T23:11:45.815+11:00As a person who frequently takes being healthy for...As a person who frequently takes being healthy for granted, I have to apologize and say that you totally amaze me with your sunny outlook and excellent jokes while you are feeling so shitty yourself. <br /><br />If it helps, you don't have to chug out 50,000 words in November - let's face it you can do it ANYTIME you want. When you feel like it. And won't THAT show Bob who's boss?VEGhttps://www.blogger.com/profile/07704685920354554043noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-66414055752411796282011-11-02T21:15:53.226+11:002011-11-02T21:15:53.226+11:00Writing is incredibly difficult with brain fog. Ug...Writing is incredibly difficult with brain fog. Ugh. This comment probably doesn't even make sense... I say good on you for giving it a go! Go you! I think you've done a pretty darn good job at raising awareness. I'm amazed at how you can produce great and profound posts despite every thing you deal with. I can so relate to how you feel right now. I'm stuck in a pit because I pushed myself too hard. I had wonderful plans to write a few articles this week too but fatigue wants otherwise. It's so frustrating when stupid symptoms get in the way. I've had a terrible day today but thanks for reminding me that there is hope for better days. Just reading this post has made me feel so much better xMiss Chronically Creativehttp://www.chronicallycreative.netnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-5291830866875211212011-11-02T18:49:17.821+11:002011-11-02T18:49:17.821+11:00I decided to not do it this year. One year, I will...I decided to not do it this year. One year, I will. Just not now. Too many things happening and too much pain. But I'm proud of those who choose to stick with it. :)Rachelhttps://www.blogger.com/profile/05326584438180614623noreply@blogger.com