tag:blogger.com,1999:blog-6181780691238814823.post3779803107167807933..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Zen. A day in the life. Dysautonomia Awareness MonthMichelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6181780691238814823.post-52672553417006335222013-10-25T15:50:11.346+11:002013-10-25T15:50:11.346+11:00Zen, I am making big wishes for you. You are an i...Zen, I am making big wishes for you. You are an inspiration and I am completely floored (pardon the pun) by all you manage to do ...from the floor! Kia Kaha (Rachel in NZ)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-69233902452939897402013-10-15T23:47:14.609+11:002013-10-15T23:47:14.609+11:00This is such an unforgiving condition, my children...This is such an unforgiving condition, my children are adults but I so wanted to be a 'hands on' Nanna, especially as one of them is a sensitive lad who needs the cuddles and understanding only a Nanna seems to have time to give these days. Zen I think you are amazing, like Michelle you have it much worse than me, yet you don't seem to whine like I feel like doing a lot of the time. I have a lot of guilt because I am unable to get myself to places alone,( which takes up so much of my husband's time, free and working) but I guess that because I was an 'arsey' independent woman before Bob got his claws into me, and I haven't shaken it all off, well maybe a lot of the independence, which accounts for the guilt at having to ask so much of someone else. Oh gawd i'm rambling again - what I think I was trying to say Zen is that we independent ladies, inc Michelle of course, obviously have an inner core of steel, as much as the devious little Bobstard tries to get us down, ultimately he won't beat us. Wishing you a 'good' day xx TriciaAnonymoushttps://www.blogger.com/profile/15309828431703333808noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-86810113054128777842013-10-15T22:39:10.525+11:002013-10-15T22:39:10.525+11:00I understand your pain and frustration...I also.ha...I understand your pain and frustration...I also.have POTS I was diagnosed at 15 now I'm 30 and I'm a single mom of 2 my 10yr son and my 4yr daughter and I too do my baking wherever I'm able that day my son helps me alot and my daughter will come and lay with me for hours and play or read it's frustrating not to be able to get them everything they need and go to school functions...Hang in there it's a roller coaster ride with peaks and valley but just listen to your body and don't over do it or you'll be back in er where no one knows anything about POTS! Anonymoushttps://www.blogger.com/profile/16486076213769275350noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-86533408851193842282013-10-15T22:08:13.196+11:002013-10-15T22:08:13.196+11:00(((gentle hugs))) I read what you wrote about miss...(((gentle hugs))) I read what you wrote about missing out on your daughter growing up, and had to reply... I'm missing out on my two young boys... and it's heartbreaking, even more so than missing out on my own life - (via LindaMadHatter, sorry Linda fixed the formatting and lost your comment)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.com