tag:blogger.com,1999:blog-6181780691238814823.post3690431914132445791..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Dysautonomia Awareness Month 2016 Guest Posts. Devon. Living with Dysautonomia in Rural Kentucky.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6181780691238814823.post-9596524444906456142017-10-30T23:53:26.702+11:002017-10-30T23:53:26.702+11:00Hello Regena! My first tilt was administered incor...Hello Regena! My first tilt was administered incorrectly in regards to the fact that they did not have the heart rate part of the test working. They were monitoring my blood pressure but not heart rate. The test should not have been given because the machine was not working. I have not heard of any test that placed you backwards.ost people are tilted at a 60 degree or so angle forward. I was given mine at one of the top clinics in the country that follows the very strict POTS definition and only tilts for 10 minutes (POTS symptoms should occur within 10 minutes of being upright.) Many places go longer though. My first one only lasted 6 minutes until I passed out, but the data was useless. I hope this answers your question. Devonnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-76429056924023673422017-05-04T14:18:35.623+10:002017-05-04T14:18:35.623+10:00Devon you said your first Tilt Table Test was admi...Devon you said your first Tilt Table Test was administered incorrectly. How so? You said your second Tilt Table Test was administered correctly. How so? I am asking because I had one administered as well. They laid me down flat for 30 mins then tilted me up for 30 mins. I have heard that you will be tilted way backwards and also upwards. I am not sure mine was properly administered. I live in a small rural town in Southern Illinois. Please help Regenahttps://www.blogger.com/profile/04929413578623982657noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-29726822324139728342017-02-08T15:32:55.088+11:002017-02-08T15:32:55.088+11:00I find your story inspiring! I was recently diagn...I find your story inspiring! I was recently diagnosed with POTS, not sure which kind yet, I was lucky enough to have a cardiologist at the hospital I was at figure it out, so I will be seeing a specialist up at Stanford hopefully soon. I hope to get my life back, I have had symptoms since I was about 15 years old, I am now 31. I also have been experiencing debilitating side affects for the last year plus. I wish you nothing but greatness, and pray that I fight just as hard as you!!! Thank you for sharing!~Lisa Lau~https://www.blogger.com/profile/15558978075584393128noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-35176066753330624432016-10-31T02:53:30.567+11:002016-10-31T02:53:30.567+11:00Devon is a wonderful person she and my daughter De...Devon is a wonderful person she and my daughter DeShaie Jordan were best friend is school God bless you. God has a reason for this we may not know why but he dose.Anonymousnoreply@blogger.com