tag:blogger.com,1999:blog-6181780691238814823.post3040694201751021810..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): "Where am I going?", "Where have I been?", "What am I doing here?", and "Where are the damn brownies?"Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-6181780691238814823.post-27151653972007647482010-11-14T05:18:47.033+11:002010-11-14T05:18:47.033+11:00I've had my Bob too, since about 1992, with up...I've had my Bob too, since about 1992, with ups and downs. YOu do describe it really well and the humor makes it a good read. I have a whole bunch of things wrong, but they center around auto immune issues (like Lupus). It is one of those "imposter" diseases and it elicits "you look fine" and "you are so pretty what could be wrong with you" comments. After so long I don't look that pretty anymore. There is always hope for recovery, some of these things decrease with age or go as suddenly and unexplainedly as they came. Keep up hope and the sense of humor. Research what causes autonomic nervous system dysfunction to the greatest degree you can. I believe in not only rebuking arrogant biggoted doctors, but in not putting my health entirely in their hands. If I were one of those who thought doctors were "gods" I would be dead.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-17822433288326190072010-10-02T00:55:03.730+10:002010-10-02T00:55:03.730+10:00This is amazing. I'm so glad you posted it. ...This is amazing. I'm so glad you posted it. Thanks.Jessicahttps://www.blogger.com/profile/07433947799961265215noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-33394611132349335182010-10-01T13:54:16.485+10:002010-10-01T13:54:16.485+10:00What a brilliant mind you have; what a brilliant w...What a brilliant mind you have; what a brilliant writer you are! My daughter has dysautonomia (POTS), I have Lupus and (now excised) brain tumor. You are right on with the anger, the humiliation, the self-excoriation, the symptoms and all the garbage that comes with autonomic dysfunction. Your sense of humor keeps you AND **US** afloat. I know all too well it's hard to have a Ferrari of a brain inside a bashed-up body, being unable to work and feel like you're not "pulling your weight," but lady, you are lifting me up. I haven't laughed like this in a long time. Thank you, thank you, thank you!<br /><br />Keep blogging about it. I look forward to more... I'm depending on you to help me express what I cannot, to identify the feelings I'm burying, and to shout out to the heavens about this rotten deal we've been dealt! Gung ho!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-43146936283560546022010-09-22T12:13:59.968+10:002010-09-22T12:13:59.968+10:00I had to replace some words with puppy dogs and ra...I had to replace some words with puppy dogs and rainbows" lol But i LOVED this blog! You told it just like it is. Your family sounds great. It's awesome to have family like that. My kids are pretty much the same, in that they just walk around me...lol Even if I'm blacked out, they will just tell someone and go about their business! :) Nice blog!Mirandahttps://www.blogger.com/profile/07401223927172594228noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-12644593215627517302010-09-22T08:24:46.162+10:002010-09-22T08:24:46.162+10:00Another amazing blog Michelle, I love "pretty...Another amazing blog Michelle, I love "pretty sick", so me! I'd much rather hide my illness, than have everyone asking how I'm feeling. Your boys will become caring, self sufficient, amazing husbands because of their experiences with a chronically ill mum. Bob is a theif, I hope he gets what's coming to him some day!Michelehttps://www.blogger.com/profile/17663301663090103466noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-66736257760087875892010-09-22T03:50:21.421+10:002010-09-22T03:50:21.421+10:00If I were Australian, hysterically funny and could...If I were Australian, hysterically funny and could write worth a crap, this is exactly what I would say...because THIS IS MY LIFE! I truly feel like you somehow entered my brain, took a look around and just started writing away. Wow.<br /><br />Thanks for writing what I have SO much trouble explaining. You're amazing!<br /><br />Thanks for stopping by my blog today and commenting on post. I really appreciate it. <br /><br />{{HUGS}}<br /><br />Teresa <><Teresa @ ♥ Too Many Heartbeats ♥https://www.blogger.com/profile/06926075458122509648noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-52298525239795771482010-09-18T19:14:11.117+10:002010-09-18T19:14:11.117+10:00Was a beautiful page. Thanks to the designers and ...Was a beautiful page. Thanks to the designers and managers.mikroenjeksiyon aşamalarıhttp://www.tupbebekgebelik.comnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-25081123066294261382010-09-18T03:58:36.615+10:002010-09-18T03:58:36.615+10:00same as above, perfectly written. xsame as above, perfectly written. xemhttps://www.blogger.com/profile/14196652412958890367noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-74392243359473296932010-09-17T16:40:56.457+10:002010-09-17T16:40:56.457+10:00Oh how I love your blog posts, Michelle. It is ama...Oh how I love your blog posts, Michelle. It is amazing how just one of your entries can engender so many different emotions. I laughed, I cried, I empathized with angry outbursts. :)Defy Gravityhttps://www.blogger.com/profile/05518385476598963740noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-87784576228832911772010-09-17T03:54:30.540+10:002010-09-17T03:54:30.540+10:00Damn funny writing, only half way through though.
...Damn funny writing, only half way through though.<br /><br />Mind you, I'm now a bit ashamed to complain about my gouty knee.Bass Prycehttps://www.blogger.com/profile/03307592905437966308noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-86730627950690035832010-09-16T18:11:44.799+10:002010-09-16T18:11:44.799+10:00Wow, how did you get in my head? I actually wrote ...Wow, how did you get in my head? I actually wrote something similar to parts of this today! Thanks for doing it so well, and with humor :)Hoping to Heal M.E.https://www.blogger.com/profile/08427447052057676116noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-91998663450979292022010-09-15T10:16:49.721+10:002010-09-15T10:16:49.721+10:00You hit every note...it's a pitch perfect essa...You hit every note...it's a pitch perfect essay on what it's like to be sucker-punched by sickness. Especially one like 'Bob.'Yvettehttps://www.blogger.com/profile/08238800725707477277noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-37860334912632099032010-09-15T05:03:55.214+10:002010-09-15T05:03:55.214+10:00I cannot believe you cursed my toast. Ke$ha brushe...I cannot believe you cursed my toast. Ke$ha brushes her teeth with Jack, Michelle! BRUSHES HER TEETH WITH JACK!Alysonhttps://www.blogger.com/profile/05318995922395308120noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-79408016760690436452010-09-15T00:00:24.292+10:002010-09-15T00:00:24.292+10:00I too will link to this post. Supplement Bob with...I too will link to this post. Supplement Bob with EDS and you say it all for me too. (am thinking of being cheeky and naming him too). <br /><br />How come I get to laugh out loud at you having such a shite time. I admit it I have just taken Oramorph and to be honest was just about to have a kip, instead I clicked on my reader and read this. Lucky me. You say out loud what most of us think with an invisible disability/rare condition. <br /><br />So feeling like shite and talking about it is OK, right. <br /><br />I am somewhat oramorphed out and have promised myself not to return to my comment to cringe .Just to hit -post comment - and go with the moment.<br /><br />Honesty in the blogging world - hurrah. No yummy mummy blogging. I read a blog the other night (another Australian one!) which left me feeling pants, a homebaking, crafting, working as well mum, all singing all dancing chocolate box perfect vomit inducing read. No offence but give me yours anyday.<br /><br />Yep, honesty is the best policy. <br />ashpauls - said it all.Acheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-69208060699295444342010-09-14T23:03:06.228+10:002010-09-14T23:03:06.228+10:00Thank you for giving words to the experience.
I w...Thank you for giving words to the experience. <br />I will send people to this entry the same way you handed them the Woman's Day YWS article.Allisonehttps://www.blogger.com/profile/16094149368099528900noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-9117149879332727462010-09-14T14:53:38.904+10:002010-09-14T14:53:38.904+10:00I LOVE reading your posts! Even the insanely long...I LOVE reading your posts! Even the insanely long ones lol. You always put me in a better mood when I'm feeling like a bag of crap!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-60752977874093596272010-09-14T14:45:50.063+10:002010-09-14T14:45:50.063+10:00Thank you, Thank you, thank you, for putting this ...Thank you, Thank you, thank you, for putting this collections of rants online! You said everything I have been trying for months to put into words about the effects of a "hysterical illness" on the psyche. I'm going to link this post to my blog, my facebook, and to a whole bunch of individuals.Sandra Keehttps://www.blogger.com/profile/16979912092987681396noreply@blogger.com