tag:blogger.com,1999:blog-6181780691238814823.post2236495144690737923..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Only as much as I dream can I be.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-6181780691238814823.post-1799494228511500472013-11-10T22:48:24.896+11:002013-11-10T22:48:24.896+11:00Dear, dear Michelle, this was the post I needed to...Dear, dear Michelle, this was the post I needed to read at the moment, and confirms my belief that things happen for a reason, as it is from so much earlier in the year, and I had not seen it when first posted. It has been a particularly carp time for me over the past few weeks, now including some really hard to deal with family problems, and to cap it all I had to dial 999 for the first time for myself on friday, and for an 'arsey' self-sufficent gal That was very scary, and a defeat hard to take. Life feels really bleak for me at the moment, and to be honest I'm now fighting the 'what's the f point' demon. But please be assured that what You take the time and a huge truckload of effort to write Does help, just being reminded that there are others feeling exactly the same feelings gives me hope that I can keep grinding on, and I should kick myself in the 'female nuts' to remind me that even if it is just for myself, Keep Bloody Keeping On, things can change for the better, but once the 'desperate deed' is done they can't :,>\ May your God bless you, thank you from the bottom of my heart xxAnonymoushttps://www.blogger.com/profile/15309828431703333808noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-37102258319922519702013-03-20T00:07:55.337+11:002013-03-20T00:07:55.337+11:00I am so glad I came across your blog.
You have no...I am so glad I came across your blog.<br /><br />You have no idea how much it means to me that you are sharing everything and putting it so eloquently. I always knew there were people out there with the same symptoms but I got to a point where I thought am I just being a hypochondriac, surely all these things can't happen at once? Not to a 28 year old. <br /><br />I get funny looks because I get to a point where I just have to sit down, wherever I am, the street, on a train, in the supermarket, which of course leads to more anxiety about leaving the house!<br /><br />I can sometimes realise that I've done too much and that's why I can't get up, but others, I have no clue. Somedays I feel like I can tackle the world and think I should make the most of my energy, do too much, then need a week in bed.<br /><br />I have other anxiety issues but I'm determined that my POTS won't hold me back thanks to you, so what if they think I'm drunk, etc, I'm going to use your example and have a can of Harden up, Princess.<br /><br />I also get funny looks for my handbag being so huge and containing emergency salt sachets, BP & heart rate monitor, water, electrolyte drinks, plastic bag and the rest!<br /><br />Thanks again Michelle, you are fabulous.JamJarhttps://www.blogger.com/profile/03713235659783859881noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-87367702301239416642013-03-19T13:13:01.553+11:002013-03-19T13:13:01.553+11:00No lipgloss, but I did wash my hair! Living on the...No lipgloss, but I did wash my hair! Living on the edge!!!Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-73472995085252008872013-03-19T13:12:24.977+11:002013-03-19T13:12:24.977+11:00Em, I totally agree, rarely diagnosed not necessar...Em, I totally agree, rarely diagnosed not necessarily rare. Given the amount of people now getting diagnosed as opposed to when we first bumped into each other on the blogosphere, it is not as rare as they make out. You do begin to think you're crazy pre-diagnosis as there is no rhyme or reason to the way symptoms present and few doctors can put the pieces together. <br /><br />I hope alls as well as it can be in your neck of the woods xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-65822229504983834652013-03-19T13:08:14.624+11:002013-03-19T13:08:14.624+11:00Glad I could help a little Amy. :)Glad I could help a little Amy. :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-23472987503020598892013-03-19T13:07:46.116+11:002013-03-19T13:07:46.116+11:00Hi Sondra, it seems weird to say glad you could re...Hi Sondra, it seems weird to say glad you could relate but I am. I totally relate to your pot situation too as I never send my husband out to buy anything without first listing all the specific details I want. Yay to nice pots!Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-3035738330988379402013-03-19T06:38:32.138+11:002013-03-19T06:38:32.138+11:00I swear you are my doppleganger!! I surely hope yo...I swear you are my doppleganger!! I surely hope you can attempt the lip gloss tomorrow :)Never Hopelesshttps://www.blogger.com/profile/09826576112980780000noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-85574564212251710582013-03-19T06:24:00.827+11:002013-03-19T06:24:00.827+11:00i needed this post today michelle thanks. i first...i needed this post today michelle thanks. i first started to get symptoms of the good old pots at 9. try explaining to the drs how you feel. after many years they put the symptoms down to anxiety. while i can understand that maybe a by product of the illness, it certainly delayed my dx by 20+ years. <br /><br />when you say that one minute your feeling fine, then next, well you just dont know how you will feel has been with me for all those years and i didnt know quite why pre-dx. i received an apology from the anxiety treating drs, in writing. however the gp was/is less forthcoming. the typical response is 'its a rare condition', mmmm i think its rarely diagnosed thats my rant over with. thanks for posting as always helpful, insightful posts. xemhttps://www.blogger.com/profile/14196652412958890367noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-22168429283176898572013-03-19T06:07:39.619+11:002013-03-19T06:07:39.619+11:00Your posts make me feel so much better! I've ...Your posts make me feel so much better! I've been a POTSie my entire life and I often need a little humor and inspiration in my life! What else do we have? Thank you for giving me a little hope today (although I'm terribly sorry you suffer with this damned condition)!Anonymoushttps://www.blogger.com/profile/10526296289260400592noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-80259788230576005212013-03-19T01:03:43.733+11:002013-03-19T01:03:43.733+11:00You have made my day. I read this out loud to my ...You have made my day. I read this out loud to my husband. It was emotional, but touching in so many ways. <br /><br />Last year, my husband picked up 3 new pots for me at one of our local stores...of course, my wish list that I sent him with was preferred size, shape, depth of color, etc. Yes...control freak! I remember so clearly laying on the bed a couple of days later, looking out the slider at the pots I had actually managed to fill with some flowers and thinking...those are some damn nice pots! <br /><br />You hit home in SO many ways. Thanks so much. Anonymoushttps://www.blogger.com/profile/04939038723321017666noreply@blogger.com