tag:blogger.com,1999:blog-6181780691238814823.post1814552897256499179..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Falling down the rabbit hole.Michelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-6181780691238814823.post-51187379337241437942014-04-07T14:49:20.808+10:002014-04-07T14:49:20.808+10:00Thanks Monshonday. I'll take that hug xxThanks Monshonday. I'll take that hug xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-3704805886244257452014-04-07T14:48:53.473+10:002014-04-07T14:48:53.473+10:00Ha Rachel! She can be a good calm dog most of the ...Ha Rachel! She can be a good calm dog most of the time but every now and then she loses the plot and gets so excited. Not so bad in a small dog but quite intimidating in a giant breed. Plus when she gets excited she snorts and blows snot all over everyone. Ugh. xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-87783260816842197802014-04-07T14:47:21.576+10:002014-04-07T14:47:21.576+10:00Thanks Michelle. Words are about all I have at the...Thanks Michelle. Words are about all I have at the moment, though even those are a struggle of late. amazing how much even a small drop in blood pressure can take away your ability to think clearly. <br /><br />I am looking forward to GoT. Love that show. :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-83962670631479942652014-04-07T14:45:41.077+10:002014-04-07T14:45:41.077+10:00Thanks Anastasia. I do hope your Summer is kind to...Thanks Anastasia. I do hope your Summer is kind to you. I am glad that Winter is Coming (and that GoT is also starting!). I do think on the bad days I should put some pillows down in the bathroom. Would make things far more comfortable. Have started a mindfullness program to try and calm the old mind and stop beating myself up for all the things I see as 'failures' on my behalf. Who knows it may work :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-38485871694870313482014-04-07T14:42:07.263+10:002014-04-07T14:42:07.263+10:00Thanks Em. I do write lists. Though I have been lo...Thanks Em. I do write lists. Though I have been losing those. Just so disorganised of late. Must be more focused on that aspect so I can break things down to be manageable. I think because we've had so much on in real life, the move, leaving my eldest back in the city for uni, losing Thor, etc has meant that there's not much time for processing anything. Hopefully as that side of things slows down I can find a bit of equilibrium. xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-46156907413564199822014-04-07T14:38:55.006+10:002014-04-07T14:38:55.006+10:00Argh. My reply disappeared. Try again. I think you...Argh. My reply disappeared. Try again. I think you're right Jan I have been punishing myself for being sick. You'd think after 8yrs I'd handle it better. But no that doesn't seem to be the case. If I'm honest the deterioration in my health the last few months has made me anxious about what lies ahead. Until I deal with that I don't think the other bits will fall into place. xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-48521207168374995192014-04-07T14:36:50.770+10:002014-04-07T14:36:50.770+10:00Yes, Mum xxYes, Mum xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-4180862253791819742014-04-07T14:32:45.446+10:002014-04-07T14:32:45.446+10:00So sorry that you are having a similar time Ricky....So sorry that you are having a similar time Ricky. You are right about "tomorrow I'll be fine" being an inaccurate assumption. I definitely haven't dealt with this decline and that in and of itself, aside from being physically sicker, means I am beating myself up for not dealing properly. So much has just slide by the wayside the last 4 months, important and not so important stuff. Just tired and not knowing where to start with it all. Big hugs to you too xxMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-38253254796754864612014-04-04T09:43:00.430+11:002014-04-04T09:43:00.430+11:00Big hug... Your beautiful woman ... Big hug... Your beautiful woman ... Corrinehttps://www.blogger.com/profile/17592172977909860639noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-24025559783471430062014-04-03T18:45:30.313+11:002014-04-03T18:45:30.313+11:00Oh Michelle you are the only person who makes me s...Oh Michelle you are the only person who makes me snort with laughter whilst making me sad about how poorly you are at the moment. My favourite line of all time was about your dog snorting cocaine before visitors came! Sounds like my mad house!<br />I'm really sorry that things are bad at the moment. XxThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-53205455580517379782014-04-03T13:53:45.874+11:002014-04-03T13:53:45.874+11:00I've got no words Michelle, The way you can st...I've got no words Michelle, The way you can still write so eloquently through all of this is quite incredible. I hope you can find your way out somehow. x<br /><br />PS Game of Thrones is also starting. Not sure if you have seen it yet but above posters suggestion of mattress near loo is a good one.Michellenoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-81209464690093901432014-04-03T13:21:36.546+11:002014-04-03T13:21:36.546+11:00Crib mattress or patio chair cushion (hey you can ...Crib mattress or patio chair cushion (hey you can have someone ELSE bleach it) or 6 in the bathroom! Or just let the laundry pile up!<br /><br />Life is changing, normal is changing. Summer is coming on here & it's only going to get worse for me. I hope winter's chill (however subtle) aids you a bit. (but my friend who's child has dysautonomia........yeah I'll spare you)<br /><br />But life keeps changing, anyone who doesn't want to adapt or even admit something is wrong can keep themselves out of my life. I'm terribly glad (& a touch jealous) that you & your beloved still have good people around. BONUS that they accommodate you!<br /><br />Hold Fast, Winter Is Coming! (p.s. The Walking Dead definitely takes top priority if you can count it as quality time with family not dragging you back to bed)anastasiadentonhttps://www.blogger.com/profile/01784150261232289675noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-40108655586389640812014-04-02T03:54:53.229+11:002014-04-02T03:54:53.229+11:00hey michelle
snap with the crap. oh those little...hey michelle<br /><br />snap with the crap. oh those little jobs that never get done, they are a pain. i have a little technique. i write a short list each week, really the list is for me to feel useful. 5 items, sometimes more, sometimes less. if i don't achieve them all, never mind they can roll over to next week, or be erased. <br /><br />other times i give myself a week off. i know that sounds funny, just a week of doing small things that i enjoy, without the pressure of the sensible jobs. plenty of rest too, which i know that seems all we do, yet without distractions help sometimes. xemhttps://www.blogger.com/profile/14196652412958890367noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-61503289267505599052014-04-01T18:33:05.955+11:002014-04-01T18:33:05.955+11:00Watching Walking Dead is your top priority. TOP P...Watching Walking Dead is your top priority. TOP PRIORITY!<br /><br />I suggest a mattress on the floor in front of the loo to soften the impact ;)<br /><br />Love your face off.kelley @ magnetoboldtoohttp://magnetoboldtoo.comnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-92161137800252109062014-04-01T12:30:59.115+11:002014-04-01T12:30:59.115+11:00As an 18 year veteran of severe chronic illness I ...As an 18 year veteran of severe chronic illness I so relate to this. Let me give you a bit of veteran advice, not that I'm not still trying to figure out the coping thing myself but, go ahead and catch up on your show. I know you have more important things that need to get done but if you keep punishing/denying yourself for being sick you'll get into a headspace where you won't be able to accomplish anything anyway. Sending good thoughts for better times your way!<br />-JanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-65715983219864801332014-04-01T12:22:13.057+11:002014-04-01T12:22:13.057+11:00It's so easy to fall back into trying to be st...It's so easy to fall back into trying to be strong all the time. I think it's a combination of pride and denial - we start off with "today is a bad day but tomorrow will be fine" and it's easy to be a bit proud and a bit strong for one day. And then the next time we look up we realise it's 5 months later and "tomorrow will be fine" has become a clearly inaccurate assumption, but we never had the emotional space and spoons to think about it. <br /><br />Don't beat yourself up for it, is what I mean. It just means you're a human being who (like every human being) is not perfect - which I suspect you already knew :) <br /><br />I'm having a crappy bad time too, both physically and emotionally. My heart and empathy go out to you.jeshyrhttps://www.blogger.com/profile/18135667107836142301noreply@blogger.com