tag:blogger.com,1999:blog-6181780691238814823.post1592510835840985694..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Kate: Maybe I’m not as sick as I actually am? Dysautonomia Awareness MonthMichelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6181780691238814823.post-21071297777088991252013-10-18T15:59:01.077+11:002013-10-18T15:59:01.077+11:00it's certainly hard to keep perspecitve when t...it's certainly hard to keep perspecitve when things are constantly changing and hard to work out when and how to trust or not trust your body, I really hope you had a good guilt free rest,KateHerberthttps://www.blogger.com/profile/02504752827650749739noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-63550815581527320682013-10-18T15:30:29.109+11:002013-10-18T15:30:29.109+11:00Thank you Kate, well written and so similar to how...Thank you Kate, well written and so similar to how I felt through my life. I have EDS-H and POTS too along with all the fun things that EDS brings. Only got my diagnosis last year after going through many periods of beating myself up for being lazy, in pain and sleepy all the time. Thank you for expressing what so many of us go through xxxAnonymoushttps://www.blogger.com/profile/05589511552708440483noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-24385269515881017542013-10-18T14:09:05.647+11:002013-10-18T14:09:05.647+11:00Kate - thank you for this. I was diagnosed just ov...Kate - thank you for this. I was diagnosed just over a year ago and am still struggling. Today i found myself having to take a sick day and spent most of the day in bed. I felt so guilty even though i know that the people around me were so understanding and willing to adjust their schedules so i could get some rest. I too felt like if i just pushed myself maybe i could do it and break the sickness barrier. This, along with a long nap, an early bedtime, some good drugs and a friend who reminded me to allow people to help me and gave me a big case of guilt away gave me some much needed perspective. Thank you!Alishahttps://www.blogger.com/profile/00910431130113359402noreply@blogger.com