tag:blogger.com,1999:blog-6181780691238814823.post1560167856702973191..comments2023-08-28T23:22:07.966+10:00Comments on Living with Bob (Dysautonomia): Michelle VS The Brain FogMichelle Rogerhttp://www.blogger.com/profile/16472120868084570461noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-6181780691238814823.post-70132628954180384642014-10-22T11:03:36.175+11:002014-10-22T11:03:36.175+11:00Yes! I still have episodes, but I recover better ...Yes! I still have episodes, but I recover better from them now. I wrote about it at my blog, but here are some updates: I found something called "DIM" that's helped my thyroid enough not to need thyroid supplements any longer. http://www.amazon.com/Source-Naturals-Diindolylmethane-100mg-Tablets/product-reviews/B000GFPCZ2<br /> Also HRT (hormone replacement therapy) during menopause is controversial but VERY MUCH worth it if you get a good doctor who understands your insistence on bio-identicals (i.e., real estrogen and progesterone, not "progestins" or "analogs."). I also take electrolytes with extra potassium every day to prevent (fingers crossed) the fainting. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-73260114146570517122014-10-15T03:36:20.535+11:002014-10-15T03:36:20.535+11:00I am having terrible time with brain fog and am al...I am having terrible time with brain fog and am also menopausal. Can you tell me if you are better now and if so what you did?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-40696277527375114882013-04-17T09:25:36.784+10:002013-04-17T09:25:36.784+10:00I can totally relate to the brain fog. I have a t...I can totally relate to the brain fog. I have a theory about dysautonomia and hormone imbalance. Suffice it to say I started going through perimenopause at the same time my my auto-immune dysautonomia-like symptoms kicked into high gear. I was 37 then, and I'm in my late 40's now, so I'm looking back at a Lost Decade. <br /><br />I needed to look "old" enough for my doctors to take my problems seriously, plus I needed to get mad and change doctors. I finally found a wobbly "fix" after 8 years, it's controversial, I'm self-treating, but at least I got my brain back. I'll try to post something back at my site tonight.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-49368445905448674022010-06-15T16:08:59.460+10:002010-06-15T16:08:59.460+10:00Robin - I find reading hard too. Some days I just...Robin - I find reading hard too. Some days I just give up. I tend t read blogs because they are shorter (though not always) but some days I just have to say nope and resign myself to the fact I may never catch up. the headaches can be brutal. 4 yrs from diagnosis and neither my cardio or neuro can suggest anything, just when we get Bob under control your headaches/migraines should improve. <br /><br />Go nurses. My sister used to be a NUM in an ER, damn hard job at the best of times. I still contend that only the cool kids get Dys :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-54680814336391067322010-06-15T08:48:52.881+10:002010-06-15T08:48:52.881+10:00I feel your brain pain. I used to be one of the b...I feel your brain pain. I used to be one of the best ER nurses in our department. Now, not only can I not think of medical terms but I can't think of the word for that thing sitting in my driveway... you know, the one with 4 wheels, dammit, it's on the tip of my tongue. Ugh! My parents and husband tell me they don't notice it. Aren't they sweet? <br /><br />The other problem is, I can't read and post blogs for long because of my brain fog and my headaches. The two combined are horrible! Sometimes even trying to concentrate on what someone is saying to me is difficult.Robinhttps://www.blogger.com/profile/12809476923136659551noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-31240405892466491982010-06-05T10:06:56.332+10:002010-06-05T10:06:56.332+10:00well I can't comment appropriately as only man...well I can't comment appropriately as only managed the first few lines and my brain got lost again. I just wanted to say - I have not marked this as read so will return and wanted to let you know that. I will will read a whole post in its entirety by the end of the weekend and it will be this one.<br /><br />See who said I don't have ambition!Acheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-39004697987767132792010-06-04T19:36:11.273+10:002010-06-04T19:36:11.273+10:00Sunburnt Earth - Thanks, and big thanks for using ...Sunburnt Earth - Thanks, and big thanks for using the word 'doovywacker'. Now I just hope I can remember it when I need it,'thingy' is getting old.<br /><br />Madeline - I knew Majorca was the way to go :)Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-20898822511671095322010-06-03T16:51:20.991+10:002010-06-03T16:51:20.991+10:00The east coast of Majorca is quieter with the reso...The east coast of Majorca is quieter with the resort of Cala Bona offering small sandy beaches and an accommodation based nightlife, with livelier Cala Millor just five minutes.<br><a href="http://www.travelsoon.com/majorca-holidays.html" rel="nofollow">holidays in majorca</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-56569061129212500242010-06-03T15:21:32.810+10:002010-06-03T15:21:32.810+10:00I can completely relate. Brain fog was in many way...I can completely relate. Brain fog was in many ways more upsetting than not being able to walk straight or stand still for 30 seconds because those little grey cells are what I've always relied on in life. Athletic? Musical? Super-dooper practical? Nup, so not happening. So to not be able to string a sentence together or remember that last paragraph was really crap. I've improved a lot but thingymabob and doovywacker and whatshisname are still staple words in my vocab....<br /><br />If it makes you feel any better, I think your oxygen deprived brain is still heaps better than most of the others out there ;)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-90641994556653196102010-06-03T13:31:36.189+10:002010-06-03T13:31:36.189+10:00Ericka - I love that you have Paul and Eds (not th...Ericka - I love that you have Paul and Eds (not that you have POTS and EDS). Oh and can I ad 'spoon' and 'fork' to the list. I often forget how to spell my name, looks really shifty when you go to sign your credit card slip and can't recall if the 'e' is before or after the 'm'.<br /><br />Lauren Lucille - hehehe that sounds so strange,good but strange, I can't wait to say "I saw Lauren Lucille on Broadway last night". Maybe we can do ANTM and chocolate one day. Oh and I'm happy to eat the chocolate for you if you still can't :)<br /><br />Elie - Thanks Elie. If you hadn't said I would never have know that English was your second language, though given you're in Greece I probably should have put 2 and 2 together. Stupid CFS and Bob, we need to dump their crappy arses.Michelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-88752771612205644732010-06-03T13:22:34.957+10:002010-06-03T13:22:34.957+10:00Miranda - So it's now official. Only the cool...Miranda - So it's now official. Only the cool kids get Bob.<br /><br />Lovable - it did make me giggle, but then again boobs are always hilarious. I'm thinking of buying a fan to attach to my ear and blow out the fog.<br /><br />Michele - 'Helen the generous' is hilarious. Should I admit that the first time I read your comment I didn't even click that it was wrong. LOLMichelle Rogerhttps://www.blogger.com/profile/16472120868084570461noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-44472382515061052232010-06-02T20:51:08.177+10:002010-06-02T20:51:08.177+10:00I have studied translation. I used to be a "w...I have studied translation. I used to be a "words" person and people admired the way I wrote (in my own language, that is). I used to write short stories and my job included lots of writing and synthesizing information. I was so proud of being intelligent, witty, of having my way with words.<br /><br />Then I met CFS. I remember sitting on my veranda, trying to figure out what my mother was saying to me. There was a thick veil between the two of us-I could hear her, but I couldn't focus on what she was saying. I wanted to say something and I couldn't remember my words. I used to confuse words with other words, being unable to recall the equivalent of words in English. I still do-and my memory isn't working that great either.<br /><br />I totally agree with Lauren. You're a delight to read! :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-38843668779356570992010-06-02T13:42:16.356+10:002010-06-02T13:42:16.356+10:00I dig ANTM too...I just sat here for like 5 minute...I dig ANTM too...I just sat here for like 5 minutes trying to think of the letters so I wouldn't have to spell it out. =) <br /><br />PS- brain fog, ugggg....my heart goes out to you and everyone else with Bob who live with this, and of course, I also have the impulse of sending chocolate- cause it looks like that really really stinks. Eek.<br /><br />And for the record, I think your writing and wit are sharp, sharp, sharp. Just saying.The Celiac Divahttps://www.blogger.com/profile/16851883423883323306noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-90613273597334815552010-06-02T13:31:05.802+10:002010-06-02T13:31:05.802+10:00Ah yes, the dreaded brain fog! I am a college stu...Ah yes, the dreaded brain fog! I am a college student (although right now, I'm part time), and it has been a blessing in that, at least my profs are somewhat understanding about the effects of Paul and Ed (POTS and EDS respectively). One in particular has been very understanding, which I would hope so, since I'm taking him for a class on "Death, Dying and Bereavement" for the summer. I am required to write a paper for this class, and I have decided I am going to write about grief and how it relates to debilitating, yet not fatal, illnesses. I hope it will be very cathartic.<br /><br />And like you, Michelle, I had much confidence, and might I even say pride, about my intelligence and cognitive ability. Now, like you, it's a struggle to come up with one word answers (I mean, how difficult is it to keep "yes and no" and "right and left" straight? For me, impossible! Don't ever let me give you driving directions) or even my own name, let alone how to spell it (thanks Dad, for the non common spelling of my name!).<br /><br />Helen the Generous!! ROTFL!!! Well, she does give out pretty good gifts on her show at times, so I can see it.Ericka McCartyhttps://www.blogger.com/profile/14541156855048563140noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-10862170049042438992010-06-02T12:53:33.291+10:002010-06-02T12:53:33.291+10:00Michelle and Miranda, I can so relate. The other d...Michelle and Miranda, I can so relate. The other day I was writing about Ellen Degenerous, and I couldn't remember her name, I could see her face, and all I could come up with is Helen the generous! My children have become so accostome to my brain fog, that when I tell them to get the thing on the thing, they can find it before I can come up with the words to help them get there!Michelehttps://www.blogger.com/profile/17663301663090103466noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-48885592538478104842010-06-02T12:52:28.031+10:002010-06-02T12:52:28.031+10:00Hey Michelle,
Thanks for your comment on my blog...Hey Michelle, <br /><br />Thanks for your comment on my blog. I'm glad my latest entry gave you a giggle. I agree with you: you definitely needed it, at least based on this post. I hadn't considered the terrible toll of brain fog. It must be so awful to feel like that. I hope the fog eases up soon -- if at all. I'm thinking of you.<br /><br />-AshleyAshley Ashbeehttps://www.blogger.com/profile/05268928207063175136noreply@blogger.comtag:blogger.com,1999:blog-6181780691238814823.post-36947353579476929182010-06-02T11:55:42.915+10:002010-06-02T11:55:42.915+10:00I am so with you on this concept...lol I used to ...I am so with you on this concept...lol I used to be the go to person to memorize ANYTHING on the spot, directions, phone numbers, ANYTHING. Never had a problem getting my words out. Now I forget my own name at times, seriously has happened signing forms at the doctors and such. Was actually an excellent writer, according to my Literary teacher for I received one of the very rare grades above 100 from her, several times. I was an accomplished song writer and musician. Earned awards for things like that. Now even if I were able to write a song, I'd forget the verse before I could write it down, and even if I wrote it down I'd forget the rhythms of the song! Seriously, this has happened. I have songs I wrote for worship band before I got so sick... now I can only remember how 1 of them went. There is one song we sing in the worship band and I've become sort of the joke (not mean jokes, but funny jokes that don't hurt but cause great bouts of laughter from everyone). The song has 4 words to it... FOUR! It's a short chorus, and every single time Darryl (worship leader) says let's do Our God Reigns, I look over to someone and say "How does that go, what are the words?" I will seriously not have a clue what the first word is even though it's sang 3 times in a row... the funny part... I sing the whole song alone the first couple times through! So I've changed from being a classically trained pianist, a song writer, and memory bank to a slushy brained forgetful and clumsy person! So I totally feel ya on this whole "Labotamy" thing. And I know I didn't spell that right, and I just don't feel like scrolling back up and finding the correct spelling in your blog...lolMirandahttps://www.blogger.com/profile/07401223927172594228noreply@blogger.com